I'm not sure where else to turn, and I really hope that somebody here can help me. I actually used to scour the Lyme boards on Healing Well back in the day, but I've never posted before. To share my story, I contracted Lyme sometime when I was younger and have had a headache every second of every day for the last 10 years. The Lyme came out 4 years ago after a skateboard crash and I ended up dropping out of college and receiving 18 months of high dose IV antibiotics for my tick-borne diseases. I was taking probiotics during this time, but I was taking 3-4 antibiotics at the same time this entire time.
I used to lean towards constipated, but after all of the antibiotics, my constipation ended so obviously something changed inside of me. In fact, my stools almost seemed to be healthier, but obviously they weren’t. I then started herbal remedies after antibiotics didn't work which included high dose probiotics, coffee enemas, and diatomaceous earths along with normal herbal remedies. My guts have always felt strong and I was eating hand over fist fiber. Beans and nuts all day everyday. In August of this year I was doing better than I ever had.
Then one day I woke up feeling terrible again. A week later a rash developed on my sensitive area and noticed that there was a very noticeable mucus sheathing, which I’d never had before, around all of my stools which were still all big and healthy. I tested negative for STD's, twice. The mucus sheathing continued alongside my rash and feeling run down and my stools started to look worse. I then ended up in the hospital a couple weeks later after dinner from a small bowel obstruction right next to my ileus that looked like a kink. 10/10 pain. The SBO(small-bowel-obstruction) was released using a naso-gastric tube, but the doctor performed laproscopic surgery on me anyways because he had no idea why a 23 year old with a perfectly health GI would have an SBO.
After the surgery, my stool kept worsening until it felt like I just straight wasn't digesting any of my food. Crazy urgency, and it looked absolutely terrible coming out. It looked like I was sick. 2 months after the operation abdominal pain started and I quickly realized it was colon pain. I was given a fecal workup and came back positive for C.Diff. I treated with both flagyl and vancomycin, but neither seemed to do anything, even while I was on them. I'm also not going 3 times a day with D like they say C. Diff does.
I recently tested negative for C. Diff but I still have constant migrating intestinal pains. I stay away from harsh fiber like beans, nuts, and raw vegetables cause they can mess me up. My stool is not loose, but it doesn’t look close to healthy. The intestinal pains never stop and I just want it all to go away so I can go back to treating lyme which makes me so crazy sick. I haven’t been this sick in 4 years. Now that I tested negative for C. Diff there is no way I can get treatment from a doctor, and my gi doctor brought up things like Crohns and UC which just make me depressed as heck. I've only been stuck in this pit for 5 months and I want to jump out as soon as possible before this gets harder to treat.
I've read up everything I could about
FMT and microbiomes online and I've got two people somewhat close to me who have opted to be donors, but I don’t know for how long. I've met with all types of doctors, even integrative doctors and no one wants to talk to me about
it. It's not against the FDA to help someone accomplish their own FMT's at home, but I guess it’s sort of a gray area right now and doctors don't want to get involved. I reside in NJ and I really thought that finding an
open minded doctor would be easier. I also thought that finding a donor would be easier. Especially in the tri-state area. I figured that with such an abundance of people needing FMT there would be tested clean people selling their stools freely.
There's a lot of conflicting opinions online and I'd really like someone more experienced in this to talk to. I really, really want to do this right the first time. I can't stand this sickness. If anyone wants to talk over email or phone I'd love that as I understand this website does have certain restrictive rules attached to it. Plus, I’m sure no one checks this every day.
I’m currently about
to order a couple thousand dollars worth of fecal testing for myself and my donor who I really hope is clean. I will post my progress on this board going forward and I hope to be one of the success stories soon. Sorry for such a long post, but hopefully it convinces you that I am who I am, and that I need help with this. Please reach out
From your boy,