Hi Sharron and everyone,
I wanted to give an update. I started the FMTs a couple weeks back.
Unfortunately, I have a bit of an issue which is that my donor -- who is a toddler -- doesn't go every day. In fact, she sometimes goes 3 days without a BM. I thought that maybe the parents weren't delivering every "shipment" or didn't know that I needed it everyday, however it appears that she's just not a frequent producer.
It looks like the frequency of her BMs is not in line with the "1-2" initial microbial punch that most FMT-ers recommend. I know that there were some studies, like Moayyedi's, that did infusions only 1/wk (for 6 wks), however most DIY-ers and other Docs recommend a higher initial frequency.
For the record, I've done 5 FMTs since 11/13, not including a small initial trial one to make sure I didn't have a reaction. It's hard to tell what kind of impact it's had since my BMs have been in a relatively better state recently, thankfully. My BMs are generally pretty hard but I have a small amount of blood which comes and goes -- possibly b/c because it's sometimes hard to pass as I've been eating a super high fiber diet which I credit for this better state - it's good to see others have benefited from this as well.
However, there seems to be a change in my BMs' smell and texture after the FMTs so maybe something is happening.
So... I am trying to figure out where to go from here.
One option would be to buy a little freezer. I just called
open Biome and asked them abt their protocol for freezing samples. They said they freeze within the day from collection time and it goes to -80C˚, however they do allow receiving physicians to freeze at -20C˚. I found a -20C˚ one online for $200. This would allow me to stock up on say 10, and, assuming she goes every third day, do 15 daily initial infusions.
Otherwise, I guess I will have to find another, or maybe supplemental donor.
It's a bit of a drag b/c I already trust her stool and had it tested. On the other side though I know that fresher is generally better.
Has anyone had experience with freezing or have any other ideas in general?
Thanks so much!
Post Edited (poopme) : 11/30/2016 10:17:26 PM (GMT-7)