Oh hey everyone!
Long time no talk.
Ive been hiding out.
Sadly, not because I'm off enjoying remission...
I have had my second loading dose and am awaiting #3 on May 19th.
Excited! I had a very stressful week when I got my second. On Easter we found out my Uncle died and then Mon I had my infusion, followed by helping plan funeral, then Tues we cleared out and cleaned his whole apartment (the most physical I had been in 10 months.)
I spent the rest of the week very stressed and upset.
I almost feel like that negated my medication :(
So hopefully the third time is a charm and I keep going in a positive direction.
Since my infusions, I have been noticing more Prednisone affects. I am down to 10 now and can't wait to be off in 8 days. Acne, mood swings, insomnia... it's all very very bad.
There was a week that I only got 5 hours of sleep (at most!) a night!
My depression has worsened and my anxiety is the worst it's ever been.
I am going in to see an actual psychiatrist or psychologist soon. Want to confirm my diagnosis and get on some different meds.
I was doing really well for a little while. And I know my depression and bad mood have increased my symptoms. UC/depression are playing that fun vicious circle game with me right now... and it sucks!!
Just when i was actually getting to be productive again :(
Hope all is well with everyone else!
Katie - 28 - 7-11-13 - pancolitis.
Currently Flaring; soft stool, sometimes w/mucous.
Prednisone - 20mg
Culturelle, S. Boulardi
Oxycodone - as needed
Past meds: Vancomycin, Balsalazide, Lialda,Prednisone - 20, 40, 60, 30 - never helped