I think 'cures' is meant to be 'courses'.
I'm totally with the French doctors on this one. To be fair, there should be some sort of time limit placed: I think after 20 years you can have a 3rd course of Pred for example. But if you're needing a course of Pred every 1-2 years, it ain't working: it just ain't working. #foundthisoutthehardway
PS: To answer the question, I lost count at some point but I reckon at least 10 courses in the space of about
8 years. For the last year and a half before surgery, I was on Pred almost continuously. Must have crammed in about
5 courses' worth in that time alone. On 40mg Pred I was in "remission", but the moment I tapered symptoms began to return. Eventually had to have my colon removed, it was that bad.
Dx Crohn's in summer of 2000.
Tried and failed: 5-ASAs, Azathioprine, 6MP, Remicade, Methotrexate, Humira.
Diet didn't make any difference either.
The only med which worked was Prednisolone, so I ended up steroid-dependent.
Had surgery 2/13 - subtotal colectomy with end ileostomy. Currently on no meds and in remission. Also prone to depression and anxiety. Ask me anything >_>
Post Edited (NiceCupOfTea) : 5/13/2014 6:23:11 PM (GMT-6)