Go through Hurst's latest post in Sharron's thread. No signs or symptoms of UC for 3 years now. He has not had a documented failure for the people who followed his method thus far. Yes, it takes a bit of work, diet modifications and other tools like wellbutrin, mesalamines, pred, anti-tnfs whatever, but it is well worth it in the end. Borody also does not just "do FMT" and then says you are cured. He uses his own protocols with antibiotics, which I don't happen to agree with, but it gets the job done, albeit thoroughly.
The whole is always greater than the sum of its parts. This does not, I repeat, does not cause UC to reoccur. The same applies to Michael Briggs and all the other cats who followed his protocol. No documented reoccurence yet.
Yes. I will continue to use the four letter word "cure". I don't like the ignorance here for the people who comment on things they haven't even researched thoroughly. The same applies to the LDN thread.
I couldn't have said it better. I can say I understand having doubts or skepticism, because I felt that way myself even after I came to the conclusion that this had a very strong chance of working. I have seen others take sometimes months or even up to a year building up their courage to act after knowing about
this before finally taking the plunge.
garylousiville - "what's the point of recommending anything else?" I agree I don't bother with any of those things anymore and don't understand why anyone would rather do that than just knock out the darn disease once and for all. And to think at one point I spent $700 a month on VSL #3.
deltaforce - As for FMT being a band aid, a band aid of course is short term tool to help your body get to the point where it can heal. I think an apt analogy for FMT would be like re setting a fractured bone and then using splints or a cast to hold it in place while the bone heals up until it is as good as new. In this case drugs and nutrition are like a cast to help get to the point where the bacterial balance is largely set and the intestinal wall is healed past a certain threshold.
ConquerUC - Perhaps we should ask what does it mean to cure a disease? Does it mean having no signs or symptoms for an extended period of time? How do can we even know if something is a result of the illness, a cause of it, or even a bit of both? It's hard to say. Its even hard to say to what extent everyone is even suffering from the same illness, certainly even most prescript
ion drugs don't work for everyone. As I learned at the Human Microbiome Conference last year in Bethesda the problem is not with the mere presence of certain bacteria but more likely the absence of certain bacteria and the absence of a certain balance of bacteria in people who have some degree of problems with their immune system, psychological stress and / or genetics.
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I can say that having talked to dozens of others who have successfully done this, that most of the people doing this have severe cases where everything else has failed. For those people FMT alone is most likely not going to be enough, for a few more moderate cases where people had gotten the symptoms mostly under control with diet, it has been enough and sometimes in only a week or so. I think for most people to take action and do this it has to have gotten to the point where they are willing to do whatever it takes to knock out UC and be better. And even then it sometimes still takes some weeks or months to build up the courage and fight through all of the roadblocks to get there.
I think part of what makes this so hard - to try something like this where even if it were to fail you are not likely to be any worse off - is that people have accepted as truth what the doctors have drilled into our heads, (or least mine.) That I was essentially a victim of an incurable illness where the best I could hope for was to take my chances with various drugs and hopefully suffer less and hopefully have periods of remission for which I would then be dependent upon taking drugs for the rest of my life to sustain. All of this while having the specter of the illness returning, and the inevitable prospect of surgery returning.
It was really discouraging and wore me down psychologically and I suffered from depression too. However mustering up the courage to act in spite of doubts and fears, take the plunge and then persisting was not always easy. However now that I have gotten there and have seen so many others also get there and be free from the shackles of the illness, I can say that I wholeheartedly encourage anyone to give it their very best shot - combined with drugs and nutrition if for no other reason than just to rule it out as an option. All you have to lose is the being stuck with this illness or losing your colon.