I heard an interesting quote today, which would get the pro-sugery folks on this board riled, but which I could only nod my head in agreement at. Basically, it was along the lines of "if we told patients everything, nobody would ever have surgery".
I don't think this is true, and the reason I still post here is to try to make the surgery process easier for people who choose it by trying to "tell them everything," like you said you would have wanted. I think I've been very
the challenges (appliance blowouts, C. diff, etc) I've experienced after surgery, as well as the successes (going back to work, becoming continent, eating a varied diet, traveling, etc). On balance it has been an overwhelmingly positive experience for me, but that doesn't mean that I haven't, for example, had to change my appliance in a restaurant bathroom because of a blowout that happened at dinner.
I benefited from having posters here like Marianne and Sue who went before me, as well as from reading the j-pouch.org and Ostomies forums... if you think people aren't talking about
every little negative thing about
surgery, then you are willfully ignoring a lot of these resources. Before I ever made the decision to have surgery I knew about
stenotic stomas, fistulae, butt burn, prolapsed stomas, surgical abscesses, chronic SBOs, and I even received "anonymous" unsolicited emails warning me that having a colectomy would ruin my life. I think you and I are in absolute agreement that people should get as much information as possible upfront, but I completely disagree that that would mean no one would ever pick surgery. Everything -- everything
-- in life is a calculated risk, from colectomy to walking out your front door.
dx'ed UC pancolitis 5/12
past meds: asacol hd, VSL#3, apriso, rowasa, xifaxan, 6mp, cortifoam, pentasa, cimzia, canasa, butyrate, flagyl, cipro, prednisone, remicade, methotrexate, cholestyramine, cortenema
current meds: none!
step one: colectomy, end ileo 1/16/13
step two: j-pouch construction, loop ileo 5/1/13
step three: takedown 7/31/13