Posted 5/27/2014 2:32 PM (GMT -7)
I was diagnosed last May with ulcerative pancolitis (it all happened very fast, I didn't have symptoms until about 3 weeks before I was diagnosed).
Since then I have constantly been up and down with flares, c. diff, and side effects from medications. I had to also leave school the middle of my first semester of Nursing school, which was very disappointing. I haven't been able to work this last year either and finally in the last couple months I started to feel much better and was looking for a job and very excited to return to school.
However, in the last 2-3 weeks things have gotten worse again. Nothing seems to stay in my system and I finally just did a liquid diet for the last three days to see how it would go, but it also made me very tired. I started taking 10mg of prednisone yesterday, and took 10mg again today.
My question is should I ask my specialist about Humira? The last time we talked a couple months ago he said that Humira was always an open option if I was not doing well, but I was fine at the time so I didn't want to go on it. Or do people think that's crazy
However, I have school in September - I go away for school - and I don't want to keep changing medications to "try and see" when they take a while to work or for side effects to show up and set myself back more and more with school and having no job.
I'm sorry if this post seems whiny, I'm still very new with all of this, and I know a lot of people here have dealt with UC flares and problems for a LOT longer than I have. I have just always been a busy and active person and REALLY want to move forward with my life! I'm so tired of sitting around feeling like I'm unable to do anything, or feeling so tired that I don't care if I do anything or not haha.
My mom has a co-worker and he has the same specialist as me. The specialist has told him that Humira seems to have an average life-span of about 7 years and could maybe get about 10 years out of it. I almost wonder if it's worth the risk to use Humira for that time, and pray that as new drugs come out in time that I could use something new after Humira - but of course that is risky.
I would love to hear from people who have been on Humira especially. I am also curious about Humira + pregnancy. I am planning on getting married next summer, and although I'm not planning on having a baby any time soon as I am in school, I do afterwards so if anyone had any experiences with Humira & pregnancy I'd love to hear. Or if you have any knowledge, because I know the website says don't take with pregnancy if you don't need to but I have read a lot of stories of people who have used it through pregnancy and have had healthy babies :)