Posted 6/29/2014 7:17 PM (GMT -7)
Hope you are all doing well... As for me, it's been a rough few months! I came off Imuran, do to bad side effects, yuck. Had a Sig-flex done and severe colitis in the rectum only as of two weeks ago. Seriously!? why's it got to be the butt-hole, so symptomatic!
However, when I was first diagnosed two years ago, it was roughly my entire colon, sparing the Transverse. So I'm thankful...(Wow never thought I would say I was thankful my butt-hole was the only thing inflamed) Got to joke with this disease!
SO HERE IS THE DEAL....
I've been tapering from 40 mg predisone... My doc wants me off because I'm VERY sensitive to the drug. Like muscle atrophy and stuff. So we are coming off and going on Uceris.
Has anyone had any luck? If I could be med-free I totally would, I hate pumping my little body with all this stuff. But, we know that can't happen, sigh.
Uceris is so new, I dunno, concerns me to say the least. However, I know that it metabolizes in the gut and doesn't run free in your body? That's good, right. Is it effective though? Any side-effects anyone?
Would love to know your thoughts, experience, words of encouragement!
Stay healthy everyone!