Posted 7/13/2014 5:38 PM (GMT -6)
Hi--I'll throw in my own two cents for what it's worth. And as the cliche goes, your mileage (or your son's mileage) may vary. A lot.
My own situation is that I am an adult (much older than your son--I have two, now adult daughters.) I was diagnosed with UC many years ago--back in the 90's. Once we got a handle on my situation, I was fortunate to have my UC under control up until about 15 months ago when I developed a flare, that I still am combating today--but at least we're making progress--slowly. However, not too long after my initial diagnosis in the 90's, we (my GI doc and me) got it under control with meds like Asacol, along with me figuring out very quickly what made me feel bad, and also with, I assume, lots of good fortune. But those first early days felt were terrible and scary. In my early years, when I got had a flare, it was able to be quickly managed--usually with a course of corticosteroid enemas.
As others have pointed out is that what helps one person may not help your son. What helps your son, may not help me. What foods bother others, may not bother him. That's one reason why you read so many conflicting things on the internet, etc.
His feelings of having to go, spending a lot of time on the toilet, and actually feeling constipated, are common when in a flare. My understanding of the process (and I may not have it exactly correct--I've learned that those on this forum are way more informed than I am) is that when there's inflammation, the swelling and inflammation hit the nerves that tell your brain that you have to move your bowels. Of course, you run to the bathroom, push and strain, which adds inflammation, and, well you get the idea--it becomes a bad cycle. Of course, there's no way of knowing when you get the urge to run to the bathroom when it's the real thing. (Being wrong once can have a pretty bad consequence, needless to say.) Even when you go go, it also feels like you've never "emptied out" and still have more to go.
Hopefully, the pred, asacol, and figuring out the right foods, will deal with the inflammation before too long, and he regains some sense of control of his body and his life. (That will go a long way to help you, as well! :))
As I mentioned, like others here, I'm also a parent. I absolutely understand your stress and how upsetting this is for you. I have found a lot of great info here--and many things that have helped me have a better understanding of some facets of UC. But, I will caution you that many people here are suffering at the extreme end of the UC spectrum. There are also many others--as I was for many years--who have UC that is under control, and are able to function well in their every day lives. Don't lose sight of that!