Posted 7/13/2014 9:15 PM (GMT -6)
My story.. abdominal pain started this past January. At first, the suspicion was that it was my gallbladder as the pain occurred after meals. Pain progressed over time and in early March I started passing blood. A CT scan showed probable UC throughout the entire colon, and colonoscopy was recommended. I ended up on six weeks of a prednisone taper and morphine. I lost 10 pounds and was bedridden in horrible pain for 3 weeks. I am 45. I had the colonoscopy in June and met with the surgeon last week for the results. He told me that my entire colon is diseased with no normal cells found anywhere. He took 17 biopsies and none showed cancer but none were normal either. He said my colon looked like I was a colitis suffer for about 20 years and now the colon is "burnt out." He said it was stiff and full of tiny polyps with lots of scar tissue. He recommends removing the entire colon, "from top to bottom" but wants a second opinion and so is sending me to a gastroenterologist for (most likely) another colonoscopy.
I have never been treated for colitis with the exception of prednisone and morphine during the flare. To my knowledge, my first flare was 4 months ago. I am fully functioning. I have pain at times after meals with gas and bloating, but otherwise I feel fine. My BM range from 0 - 4 a day, but not formed. I can also go a long time without having one at all necessitating laxitives.
Needless to say, I was stunned to get my colonoscopy report as I thought my diease would be mild. I think removing my colon seems premature given my symptoms. I am happy to be getting a second opinion, but need to wait 6 weeks to see anyone.