I have had UC since I was 23, for 23 years. I have had some bad flares, but have been on Immuran for more than 10 years, flares settled down. The problem is, after all those years with the disease, when I need to make poop, I have no control... It must happen immediately or I will lose it in my pants. Since my overall health has been ok, it would seem silly to operate. Nowadays, every morning before work I use 4-5 suppositories to try and get everything out of my bowel before I start driving, and I take 6 it 7 immodium to keep me stopped up during the work day.
Does anyone know of something that might allow me to be more continent? The problem seems completely confined to lower colon and rectum, but the worry is disrupting my whole life and limiting my participation in many activities.
Is your UC under control? Are you in remission? If so, then I believe what you describe is entirely psychological, the product of years and years of UC pain and desperation. It takes a long time for your mind to adapt. So, while every urge may feel desperate, but is it physically desperate or just in your mind? I think this is a very important point.