That's why I'm kind of saying that an IBD specialist doesn't really have any magic pills that a regular GI doesn't have. If that's the best a specialist can do is offer you Cyclosporine and you yourself would pick surgery over it, then what's the point? Accept I think you are right about the surgery aspect of it all.
Whether it is a GI or an IBD-GI the objective should be to find a good doctor.
One of the things that I neglected to point out was that the IBD-GI who deals with IBDs everyday can give a different prospective than a GI that does just C-scopes and writes script
s. I remember when the IBD-GI wanted to put me on 6-mp for the first time and I really didn't want to start immuno-surpressents. He told me that 6-mp was an older well studied drug and in the doses that we take it was very safe compared to the organ transplant patients. He then took me over to a wall in the office and there was about
75 baby pictures on the wall. He told me that their mothers were part of a study that their practice did with pregnant mothers who were on 6-mp and all the babies were healthy.
My local GI who is also my PCP can not offer me that type of prospective, he really only can offer me a scope and routine office visits. He also encourages me to go to the IBD-GI because my UC was so aggressive.
I ended up with some neurological issues, like dropping stuff, tripping, dragging my feet, difficulty typing and thinking clearly. I kept going to my PCP-GI and he didn't know what was wrong with me to the point were he wanted to send me for a full body cat-scan. All these bad thoughts were going through my head so I finally made an appointment with the IBD-GI and he said that he'd seen this 5 or 6 times and it is serum sickness from the Remicade. He ran some motor skills tests on me and told me that it would go away once I stopped Remicade and that I may or may not get it from other biologicals.