As far as bona fide flares go, with urgent bloody diarrhea 15 times a day, drenching night sweats, extreme arthritis in my joints, skin lesions, severe abdominal pain, and relentless weight loss, etc., then I have been in remission for over four years.
However that is not the whole story. When formed stools gradually become softer and more frequent I increase Culturelle probiotics to about
4 a day. (Directions say to take one capsule a day but that is not enough for me). Formed stools are excellent feedback that I am on the right track.
I have to be very vigilant how I eat. Eating something bad at lunch, whether by accident or not, will for sure produce bloody diarrhea that evening. I have an individual and eclectic list of verboten foods that I need to avoid.
Sometimes a serious flare appears to be invading my remission. Bloody diarrhea along with stomach pain are the first signs. I really cannot stand the taste of powdered psyllium seed, (yeech!), but when I mix it in liquid with 2 packs of VSL#3DS once or twice a day, it has repeatedly snuffed out oncoming flares immediately before they become full-blown and serious. Once you are in a serious flare it is very difficult to escape from it.
Psyllium husk does not work as well for me. Adding flavor like stevia doesn't help with the taste. (Think whipped cream on shiit).
No matter how healthy I feel I know that I am far from normal. For example regular blood work says my CRP, a measure of inflammation, is around 4 or 5. Normal is under 3. So I know there is something brewing in my gut.
Before UC my CRP level was always around .3 or .4. At the height of my last flare it was over a hundred (this is not a misprint). So I am always vigilant that something might creep up again.
Male/62 DX IBD in Feb08. No meds, allergic to Mesalamine. Remission since Mar2010. Psyllium seed mixed with VSL3 is very helpful. Several Culturelle a day firms up stools. Food diary instead of SCD or Paleo.
Probiotics, Fish oil, potato starch, magnesium, multivitamin, extra D3, K2, E complex, boswellia, curcumin, DGL, glutamine.
Resistant Starch and lots of fruit & vegetables (but no cruciferous), No Gluten, no soda, no HFCS, no xylitol or sorbitol, no trans fat, no shellfish, no carrageenan, no GMO foods saturated with Roundup.Nature created all of the locks, therefore Nature has all of the keys
Post Edited (IamCurious) : 7/26/2014 7:22:12 AM (GMT-6)