Posted 8/2/2014 5:36 PM (GMT -6)
haha notsosicklygirl....I'm the same way. I feel like every time I tell someone I'm feeling better I start getting worse, so I try not to get too positive too quickly. I'm afraid of being let down, again.
Yea Kat, Entyvio can take up to 3 months. My doc has 3 patients on the same schedule as me (started the same day). One is not really responding yet, the other is having some improvements but nothing earth shattering. I'm definetly doing better than before, even with the abx. Still LOTS of room to improve, but I'm optimistic still. Like I said I'm not letting myself get excited because I don't want to be let down, it's happened way too many times with this disease. I've been off steroids for about 2 weeks now but it sometimes takes me a few weeks to start getting worse once I stop Pred. We'll see...don't be discouraged, like I said my doc said it could take 3 months and they're not too concerned about not having much of an improvement this early on.
My next infusion is also on the 7th.