A few weeks ago I posted saying that my GI either wanted to increase my azathioprine, or start me on methotrexate, tacrolimus or ciclosporin.
My blood tests have come back, and instead of being allowed to increase my azathioprine, I've been told that I'm actually taking too much and my body isn't metabolising it. So I've been told to REDUCE back down to 75mg, a dosage which I'm sure is fairly useless. It's clear that it's no longer working for me, so I have to consider a new plan. (Blood tests also showed a CRP level of 19 and an ESR of 16, as well as high white blood cells, platelets, eosinophils and more which I can't remember).
Seeing as the other two are bridge drugs, my GI wants me to start methotrexate, but I don't want to. I know doctors know best, but I'm simply not convinced that it's effective for UC, and I don't think it's worth all the risks that come with it.
I've begun taking l-glutamine and hemp oil, which aren't really working yet but it's only been a week or two. I want to start VSL#3, but being a student I just can't afford it right now.
Currently I'm going six times a day, blood, some mucus, some pain, exhaustion, racing heart beat, occasional low grade fever. Looks like my only option is metho, but I would really really rather not. Am I allowed to refuse a doctor's suggestions? (I don't know if we can just 'get a new GI' here in England).
So my problem in a nutshell is this: I don't want to stay on a serious drug like azathioprine if it's not even doing me any good. But at the same time, I don't think it's a good idea to go med free yet, and I also don't want to move up a level to methotrexate. I just don't know what to do, and any wisdom would be greatly received.
Post Edited (malaika) : 8/20/2014 6:19:21 AM (GMT-6)