I was diagnosed with proctitis in october 2012. My GI gave me salofalk (5-asa) suppositories, but they didn't do anything, so he prescribed me oral salofalk with salofalk enemas. I reacted very badly to those two (throwing up, headache, general feeling of dizziness, weakness, etc) after the first dose. By then I had 10-15 BM with Bloody D. My Gi told me that I was probably intolerent to 5-asa so he gave me cortifoam. I tried it a couple of weeks but it didn't help at all. By Christmas, I had 20+ BMs with even more blood loss. I was finally hospitalised in january 2013, where I received blood transfusion (my hemoglobine level was 5,4 g/dL) and IV cortisone. Then I was on prednisone (40 mg for a while, then 35 for a week or two, 30mg for maybe 6 weeks and slowly tapering) while introducing imuran. I went into full remission, and except for mucus and gas once in a while, I was well. I was (and still am) on 150 mg of imuran, which is the maximum for my weight
I had a flare in march 2014, only 2-4 BMs a day, but with constipation and a lot of blood/mucus... I was so scared to be anaemic again, I tried budesonide enemas, which helped, but only for a month and I never went into full remission. The flare suddendly stopped after 3 months when I was taking antibiotics (for an unrelated condition) and probiotics (but with only 6 billion UFC, so it shouldn'T have helped). I didn't understand and neither did my GI, but well I was happy.
Unfortunately, I have another flare right now. It started a month ago. My symptoms are pretty mild (1-2 BMs, mucus and blood) but I'm so scared of it getting worse.. I take nightly budesonide enemas and cortifoam in the morning, but it doesn't seem to be helping
Now here I am, my Gi prescribed pred (40 mg 1 week, 30 mg 1 week, 20mg 2 weeks and tapering), but I'm 19 years old, just stared university, met someone... I don't want to gain weight and have a swollen face full of pimples. The other option would be the biologics (remicade or I think he mentionned another new one)
Do you have any ideas on what I should do? I'm now taking 100 billions UFC probiotics (renew life) but it doesn't seem to change a thing.
Thanks for reading, I wrote more than I intended
Post Edited (zephyraph) : 10/3/2014 10:08:56 AM (GMT-6)