I currently am having a flare and my doctor changed my meds a bit. I was using Apriso (4 pills daily) and a mesalamine enema nightly. That did the job for a long time. I had a colonoscopy Monday and found that my left side is in good shape, so the enema is working. The remainder of the colon is actively flaring, so the Apriso is not working any longer. He changed me to Delzicol (4 pills 3 times a day), and I am just wondering what to expect. When I first started the Apriso and enema, I started losing hair like crazy. It finally stopped after a few months and my hair mostly grew back. I will still be using the enema nightly. He also has me on prednisone starting at 60 mg daily and tapering by 10 mg every 7 days. I've done that before a few times and I hate that stuff, but at the same time I have to love that it helps. I know that everyone is miserable with this disease, and I hope that someday something can be done to actually cure it once it is diagnosed.
Thanks to all for any comments you have!
Taking it one day at a time -- NeverSursie