At the beginning, be very careful with diet and pain meds. If you are maxing out the pain management pump using morphine, STOP USING IT. Ask for Dilaudid. Note that the pain will significantly ramp up in the 24 hours after the operation as sedative fully wears off. Taking narcotic pain meds will slow down your bowels, and they brought mine to a halt. Find something that works for you!
Dilaudid slows the bowels just like morphine. Your best bet for pain management without slowing the bowels is Tylenol.
Glad you're doing well and I agree with the rest of your post-op advice :)
You're right, any narcotic slows down bowels, but had I been given dilaudid earlier it may have prevented my (and others') ileus. Dilaudid is actually much more powerful, BUT if it works better for you than morphine you don't have to use too much of it. By not using as much you minimize the slowing effect. Also, while Percocet is much weaker, I believe that it contains Tylenol, which as you said does not have that effect.
Katmom, thanks for the update. My loop ileostomy itself has been a champ: nutrition and hydration have been excellent (ironic, given that I named it Rowdy). I am delighted to hear that your daughter is returning to Life again. I am slowly doing the same. The week I got out of the hospital I was already looking at fresh internship applications... I just have to take it slow. Just wondering: can she get more than 2-2.5 days of seal out of her ostomy bag? While I know she doesn't have the hairy belly problem, I imagine she shares my skinny belly problem. Does she also have difficulty with the flange not adhering well to the concave surface around her navel? It's really making the bag a hassle for me... I will also post on the ostomy forum.
21 y/o male
UC: Diagnosed proctitis September 2013; pancolitis January 2014
Conventional drugs not successful
Antibiotics help a lot, Low Dose Naltrexone, CBD oil, Fish oil, Turmeric, occasional Vit D
SCD probiotic yogurt
FMT 11/2014 w/ antibiotics & antibiofilms, aborted after 6 days worsening symptoms
Nothing worked. 12/2014 Proctocolectomy with ileal pouch anal anastomosis