@NSSG Thank you for the kind thoughts.
I have what I think is a pretty darn positive update.
Surgery went well. The team was able to stay laparoscopic, successfully removed the pouch without removing any other tissues, created a nice (currently ugly but should be good) stoma, reported pretty minimal adhesion issues. Things went smoothly.
My surgeon told me that I definitely made the right decision and mentioned that my swollen stoma is a sign of how sick the Jpouch was. The sinus was not healed and IMO was the #1 contributor to pouch failure.
So far, so good as far as recovery. I am not expecting any long term complications (please God) and am generally very optimistic. I feel so validated after two years of being told that it's in my head or that I just need to take more immunosupressants. I just wish that we could have cut the BS sooner about
the truth of this junk J-pouch.
I am remaining *cautiously* optimistic and will continue to update.
22 y/o male
UC: Diagnosed proctitis September 2013; pancolitis January 2014
Conventional drugs not successful
Supplements, LDN, antibiotics, SCD probiotic yogurt,SCD/Paleo diet,FMT,
Nothing worked. 12/2014 Jpouch w/ temp stoma 4/2015 ileostomy reversal