Just got home after about a fortnight in hospital with a really stubborn flare up. Was on 40mg oral Pred for about a month before GI decided to admit me for IV Hydrocortisone, which seems to have worked so far which is great - only having 2-3 bm's a day
This is a bit of a silly superficial post really, but I'm feeling very very down in the dumps now that I'm home. I obviously didn't feel good in hospital, but due to everything that was going on I didn't really have much time to think. Now that I'm back home though I'm starting to notice the silly little things like how much weight I've gained due to the Pred (especially the moon face, which makes me want to cry every time I look in the mirror). I know it all sounds a bit silly in the grand scheme of things to worry so much about how I look, but I always take quite a bit of pride in my appearance and it's just making me feel so down. I'm even nervous to go into town incase I see anybody I might know, and I can't bring myself to let any friends visit me.
I'm back onto 40mg oral Pred again now until I start tapering very slowly on January 5th, which is when I will be starting to take Azathioprine. So there's not much chance of shifting this awful weight before then. Does anyone have any tips for weight management on Pred? Or is it just a waiting game?
Sorry if all of this seems a bit silly, I'm just struggling a bit at the moment with how overwhelming things feel. Thank you x
Pred is your chance to knockout tons of stuff you will not want to be doing when your tapered off and leaning out. Live in the now, it is what it is but you will bounce back.
I chose to avoid pred on the last deep flare and I never came back 100%, no blood but dealing with night urgency.
Its a trade-off, I am lean and in good shape in terms of my bodybuilding but a complete pred cycle would have healed me 100%.
We each need to accept the positives that go with our choice and nothing lasts forever.
My daughter wanted to be home schooled but laments about
the lack of interaction with other kids - same thing. I tell her to appreciate the upside it offers now, next year she is entering high school and will be immersed in an ocean of students so why miss it now ?