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fear of cancer? Am I alone?

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Ulcerative Colitis
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bellski
Veteran Member
Joined : Apr 2008
Posts : 502
Posted 1/4/2015 5:33 AM (GMT -7)
Hi Friends,
I am in my first real flare in eight years, basically since I have been diagnosed and started meds. So, in a way I kind of feel like a new patient. I am just not used to flaring and see blood regularly. So, my mind goes to thinking that this can turn into cancer. I had a good colonoscopy this past summer. Is this fear crazy? What I want to hear from you is that I don't have cancer. (-: Thanks.
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DMC2011
Veteran Member
Joined : Jul 2011
Posts : 2512
Posted 1/4/2015 5:55 AM (GMT -7)
You prob don't have cancer. What meds kept you in remission so long?
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TroubledTurds
Veteran Member
Joined : Jan 2004
Posts : 8585
Posted 1/4/2015 5:59 AM (GMT -7)
you don't have cancer -

is it a crazy thought, absolutely not - one that you should spend much time thinking about ? nah !
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iPoop
Forum Moderator
Joined : Aug 2012
Posts : 16177
Posted 1/4/2015 6:20 AM (GMT -7)
Flares just happen, and if you made 8-years without one then you're extremely lucky. You don't have cancer and here's why, 8 years without symptoms means you had zero inflammation and normal looking tissue in your colon which gives you the same odds of colorectal cancer as the average healthy person on the street. Cancer begins on abnormal tissue (known as dysplasia), if you were inflamed and flaring for 8 years then your cancer odds would be much higher than the average person. It's common for your gastroenterologist to do an examination, like a flexible-endoscope when you flare.
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IamCurious
Veteran Member
Joined : Jan 2010
Posts : 3545
Posted 1/4/2015 6:32 AM (GMT -7)
JMHO:

The modern fad for treating UC is to load up on the biologics, immunosuppressants, and Big Guns at the start of taking meds for treatment. If a doctor tried to pull that on me then I would insist on a 2nd opinion, probably from and “old school” doctor who would start out with the mesalamines and 5-ASAs. Reinforced with mesalamine enemas taken as needed.

Mesalamines help to inhibit colon cancer. Immunosuppressants don't help. That is all I need to know. There are members here who can remain on the milder mesalamines because by monitoring their diet they don't need the Big Guns to manage their disease.

If there is any advantage to having UC it is that by getting regular colonoscopies doctors should be able to nip pre-cancer cells before they morph into something serious.
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bellski
Veteran Member
Joined : Apr 2008
Posts : 502
Posted 1/4/2015 6:41 AM (GMT -7)
Thank you everyone.
The medications they first put me on were asacol and canasa...still on them......that is what helped me get into remission right away and stay in it. I didn't use a lot of canasa after a while but now am using it twice a day.
Still searching for the best diet to be on...it is a guessing game. I recently gave up coffee and think I should also stay away from wine...rarely have wine but think it aggravated things when I recently did.
Thanks for relieving my cancer fears. (-:
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iPoop
Forum Moderator
Joined : Aug 2012
Posts : 16177
Posted 1/4/2015 7:34 AM (GMT -7)
"There are members here who can remain on the milder mesalamines because by monitoring their diet they don't need the Big Guns to manage their disease." I strongly disagree with this statement. I'd say disease severity plays a much bigger role on that than diet. Diets help some with symptoms others not so much.
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garylouisville
Veteran Member
Joined : Aug 2012
Posts : 9088
Posted 1/4/2015 7:38 AM (GMT -7)
I agree you don't have cancer. Seeing blood can be a symptom of cancer in a normal "healthy" person but i'm not so sure how much that applies to a UC'r. It is "normal" for us to have blood. Cancer in a UC'r is caused by the constant tissue damage caused by inflammation so if you have been doing well or in remission that tissue damage due to inflammation is almost nonexistant.

As far as diets go I think the best diet is finding out what works for you and what doesn't. Too many people get way to caught up in following name brand diets in my opinion.
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Guardian7
Veteran Member
Joined : Apr 2006
Posts : 2682
Posted 1/4/2015 7:38 AM (GMT -7)
The emerging field of epigenetics is poignantly pointing out that certain lifestyle factors (good diet, low stress levels, sunlight, etc) mitigate cancer risks. For example, we know that a diet rich in beans and other resistant starches have shown to reduce colon cancer rates.

Just know there is much you can do on the preventative side of things. Do whatever you can whenever you can. YOU are in control.

Best.
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jujub
Elite Member
Joined : Mar 2003
Posts : 10421
Posted 1/4/2015 7:40 AM (GMT -7)
5-ASA's never worked that well for me. Mesalamine made my symptoms much worse, and Balsalazide only relieved them a tiny bit. However, I've always stayed on the Balsalazide because all of my GI's have stressed its role in cancer prevention.

My mother died from colon cancer, so I have a double risk-factor. Still, I don't really think about it much. I have a colonoscopy every two years even in remission, so I know that while my risk of developing colon cancer is increased, my risk of dying from it is greatly decreased.
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IamCurious
Veteran Member
Joined : Jan 2010
Posts : 3545
Posted 1/4/2015 7:50 AM (GMT -7)

Ipoop said...
"There are members here who can remain on the milder mesalamines because by monitoring their diet they don't need the Big Guns to manage their disease." I strongly disagree with this statement. I'd say disease severity plays a much bigger role on that than diet. Diets help some with symptoms others not so much.

Tell that to Kaz and Ima. Nobody is saying that diet works for everyone but diet modification is effective for some of us. I am allergic to 5-ASAs. Supplements help but there is no doubt in my mind that without monitoring my diet then I would either get on a Big Gun med or seriously consider surgery.
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The Rock
Regular Member
Joined : Nov 2014
Posts : 155
Posted 1/4/2015 9:34 AM (GMT -7)
It's completely normal to have that fear, I worry about it all the time when a flare starts coming on. It's natural, assuming the worst is what we've evolved to do, it's what helps keep us alive. Fortunately, things will improve and you'll relax when you realize that the fear is much more unfounded than you've assumed. If you're in need of some peace of mind, head to your doctor and set up an examination.
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ceecee600
Regular Member
Joined : May 2011
Posts : 318
Posted 1/4/2015 9:50 AM (GMT -7)
funny, that I worry about everything except colon cancer. I worry more that I will lose my colon to this disease taking over and not being able to achieve remission.

I agree with Iamcurious I think that the fact that you have uc and get regular colonoscopies then we are probably better off than the rest of the population that doesn't get regular checks
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quincy
Elite Member
Joined : May 2003
Posts : 32483
Posted 1/4/2015 10:38 AM (GMT -7)
belski....if your biopsies pathology report (I hope you have a copy) was unremarkable regarding precancer changes, put it out of your mind for now.

you're not on enough rectal med dosage...ask your doc for the retention enemas of 4g. Use them at night and the canasa during the day.

how long since you were having flare symptoms?

What's the extent of your uc...throughout or limited?



q
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Diva2014
Regular Member
Joined : Nov 2014
Posts : 68
Posted 1/4/2015 2:33 PM (GMT -7)
Bellski, I just wants to you to know that all kinds of meat (red meat most) is a big factor in causation of colon cancer. In spite of efforts to confuse this issue by junk food industry( just like cigarette companies), research in last 15 years has settled this issue. It has been proven beyond reasonable doubt that meat is a major factor in causation of Colon Cancer. The colon cancer rate in vegetarians is very very low compared to meat eaters. ( Statistical fact) Plant based diet prevents not only colon cancer but many other types of cancers such as Uterine,Ovarian, Breast cancers.
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imagardener2
Veteran Member
Joined : Jan 2010
Posts : 5896
Posted 1/4/2015 2:43 PM (GMT -7)
Guardian said:
The emerging field of epigenetics is poignantly pointing out that certain lifestyle factors (good diet, low stress levels, sunlight, etc) mitigate cancer risks.

I just saw an article today that disputes this statement (if I can find it I'll post link). They found that genes play much less of a role and that getting cancer is much more random bad luck than previously thought. Can't dispute studies such as 7th Day Adventists who have less cancer and live longer due to low meat, high veggie intake and positive social interaction however.
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garylouisville
Veteran Member
Joined : Aug 2012
Posts : 9088
Posted 1/4/2015 2:53 PM (GMT -7)
I posted a link to that article in an already used thread recently. Can't remember which thread it was though.
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jujub
Elite Member
Joined : Mar 2003
Posts : 10421
Posted 1/4/2015 2:59 PM (GMT -7)
Genetic studies are also showing that there is a much larger genetic link than previously suspected, at least in Crohn's.
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bellski
Veteran Member
Joined : Apr 2008
Posts : 502
Posted 1/4/2015 2:59 PM (GMT -7)
Thanks everyone.

Quincy, I will ask my Dr. about the retention enemas...(I am always afraid to go on big meds...is this a steroid?) I go back to Dr. in February. I have been in this flare for about two months I think, and this is the only real flare I have had since starting meds eight years ago. My UC was diagnosed as proctitis so I am fortunate and hope it doesn't go beyond that.

Also, Thanks for the info on red meat Diva. I don't eat a lot of it and will keep that in mind for sure. My daughter is a vegetarian and she will be glad to hear this too.
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ewafromwarsaw
Veteran Member
Joined : Jun 2013
Posts : 1407
Posted 1/4/2015 4:30 PM (GMT -7)
according to many Polish medical papers i've read, we run the same risk of cancer as the rest of healthy population. I'm sure you'll be okay soon following the advice people here are giving you :)
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malaika
Veteran Member
Joined : Feb 2014
Posts : 524
Posted 1/4/2015 5:10 PM (GMT -7)
Not to minimise the severity of it, but isn't colon cancer very treatable, especially when you're screened as regularly as we are? That's why I'm not that concerned about it.

The drug induced lymphomas, however, do haunt me a little.
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bellski
Veteran Member
Joined : Apr 2008
Posts : 502
Posted 1/4/2015 5:17 PM (GMT -7)
Thanks! I honesty am not worried since hearing back from all of you. (-:
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