The Rock said...
I can't believe the level of pessimism people have, it's best to hope for the best. This is as good as it gets, and that's the bottom line.
Yeah, I know. I hate being a pessimist but I've seen so many things come and go and people are still having surgery. I don't even have high hopes in Borody. I asked my GI about
him and she said his studies are inaccurate and not well documented. She seemed like she knew quite a bit about
the topic of FT and she was very informed on all of the alternatives that come up here regularly. She's quite bright and follows all different avenues, she never discourages me from asking questions, or says absolutely NO to anything I mention, but she definitely brought down my hopes on FT being a great option. I would try it regardless. Heck, anything before losing a colon and accepting pooing 6x a day. But yes, pessimist for sure. I was less so when on antidepressants.Because the FMT data is scattered all over the place and quite frankly, the funding would be an issue for that kind of treatment. The recent studies all it's promising (with the patients discontinuing treatment). It's also kind of hard to show something when the right personnel aren't conducting the studies, and when they discontinue it despite showing promise.
I honestly would not trust a GI that regurgitates information that most of her peers are likely to tell her. What exactly is inaccurate about documented
UC patients being free of disease after FMT? Also, personal experience triumphs most manipulated pharmaceutical data, or anything that a white coat tells you. YOU know better to trust yourself than other people, NSSG.
A locum GI (in a conventional practice) I saw
opened my mind to it, as well as other treatments like LDN and tricyclics. And he actually told me to try it because of the current dismal options out there.Well yeah, you can't trust anyone. She may be tryin to push me the other way for her own benefit. I don't have a good donor anyway so FT isn't going to happen for me unless there was a clinical trial where they provided a donor stool. I see other drs, that is just one drs opinion. One of my old drs was really hopeful about
worm therapy but then I have seen so many people have no luck with it that I started to doubt it as a valid option. There isn't a lot of recorded data on a lot of these things and you're right, it doesn't make financial sense for companies to invest in clinical trials of things that could make their drugs unnecessary. Even doctors, it could make them unnecessary if we can all put poop up our butts and be 100% forever.
Co-moderator: Ulcerative ColitisDiagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: prednisone + remicade