Budesonide making things worse?

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DMC2011
Veteran Member


Date Joined Jul 2011
Total Posts : 2504
   Posted 1/15/2015 12:58 PM (GMT -7)   
I started out with 9mg, then 6mg then 3mg and to tell you the truth I have been on a slow simmer the whole time. I was going to go back up but decided to stop taking it all together to see if it is actually hurting and not helping. I will keep taking apriso, hydrocort and canasa.

I went back up to 6mgs and got a all over rash and really puffy cheeks like imediatly. I think its just not helping but actually getting in the way of healing.

Anyone else have this reaction? Thx!
Left sided dx. 2011
Current med: Apriso 4 a day
Cortenema
Canasa 2 a day
Budesonide 2/day
Vsl 3 packet 1 a day
Quit LDN until I feel better/flu symptoms

Supplements: on hold
Diet: no lactose, low fat, no uncooked veggies, No honey or HFCS!! Low gluten

Bacon Girl
Veteran Member


Date Joined May 2011
Total Posts : 5474
   Posted 1/15/2015 1:25 PM (GMT -7)   
I felt terrible on budesonide. My diarrhea and cramping tripled when i was on it. My doctor said i was allergic to it.
Joanna Banana, 25
100 mg Simponi every 4 weeks
25 mg imuran daily
21 mg nicotine patch
AlgaeCal, Strontium, Curcumin, Probiotics, DMSO, Fish Oil/CLO, essential oils, castor oil

Diet: low carb, high fat paleo (meat, eggs, cheese, butter, kefir, resistant starch, bone broth, kraut, chia, seed butters, and some veg/fruit- cucumbers, tomatoes, all squashes, carrots, avocado, green banana, tiger nuts)

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4812
   Posted 1/15/2015 1:26 PM (GMT -7)   
I've been on it for a few months and haven't had any issues. It's the first time that I've ever used Budesonide.

Did you tapper at all as you went down to a lower dose? Like 9 mg day-1, 6 mgs Day-2, 9mgs day-3, 6 mgs day-4 and then full time at 6mgs? With Predisone tapering I would have symptoms increase for a few days while tapering and then they would get better.

I missed 2 days in a row of Budesonide due to prepping for a flex-sig and I definitely suffered from withdrawal.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cyclosporine -- Twice
3-step J-Pouch surgery:
Colectomy- October 2013
J-pouch Creation: March 2014
Take-Down: June 2014

DMC2011
Veteran Member


Date Joined Jul 2011
Total Posts : 2504
   Posted 1/15/2015 2:03 PM (GMT -7)   
Yes, I tapered but was actually told its not really nec with this drug. But we shall see because I am done for now.

;-)
Left sided dx. 2011
Current med: Apriso 4 a day
Cortenema
Canasa 2 a day
Budesonide 2/day
Vsl 3 packet 1 a day
Quit LDN until I feel better/flu symptoms

Supplements: on hold
Diet: no lactose, low fat, no uncooked veggies, No honey or HFCS!! Low gluten

DMC2011
Veteran Member


Date Joined Jul 2011
Total Posts : 2504
   Posted 1/17/2015 2:27 PM (GMT -7)   
I don't know if it's from not taking the bud or if it's because I used 2 canasa yesterday but last night I woke up with migraine and nausea and actually threw up. This morning my poop was fine.

I am having a really hard time this time figuring out what works for this flare.

Now I am using hydrocortizone 1/2 in morn and half at night and will never use two canasa a day again.

Sticking with apriso 4 a day and really careful diet as well.

This has Ben so hard! ;-(
Left sided dx. 2011
Current med: Apriso 4 a day
Cortenema
Canasa 2 a day
Budesonide 2/day
Vsl 3 packet 1 a day
Quit LDN until I feel better/flu symptoms

Supplements: on hold
Diet: no lactose, low fat, no uncooked veggies, No honey or HFCS!! Low gluten
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