so I bought some nopal...

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calm-on-the-outside
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Date Joined Aug 2009
Total Posts : 832
   Posted 2/5/2015 5:45 PM (GMT -7)   
Noticing some morning improvement. ..but I tend to go through phases...even on pred.

But I really like this water...it's soft and easy to drink.
.
Amy, 38, dx with idiopathic colitis July 2009, confirmed UC Sept 2009
Currently: In some kind of weird semi/mini flare since Nov 2013
Previously: In Remission since April 2010

Lialda - 4/day
Prednisone - Started 40mg 1/11/15
Mesalamine enema every night
Cortifoam - as needed
Probiotic, Vitamin D3, Calcium

RoyalFlush
New Member


Date Joined Jan 2015
Total Posts : 10
   Posted 2/6/2015 7:40 AM (GMT -7)   
Hi all!

I've been using nopal for about two weeks. Prior to starting, I was not having any blood, I had soft but formed stools, and I had random urgency (usually after my morning soda, as usual). After starting Nopal (I drank about 16 oz in the morning), I suddenly saw some blood in the morning for 2 days, then nothing for a day, then in the morning for a couple trips, then no blood since. For me, the beginning of blood either ends in a day or two (like a random wave from my colitis) or it lasts a month and comes with urgency, stinging pain, and dull pains (as we all know). This time, I had no pain - just blood; no urgency, and mostly formed stools (minus one trip after two nights of big salads). My girlfriend is a huge believer in holistic/natural remedies (i.e. healing from the inside out, not masking with meds) and had a theory about why blood started coming out without any other symptom (i.e. pain & urgency), which is/was when the body heals, especially ulcers in our large intestines, (stay with me because I was skeptical, plus it's hard to explain in my words) may not be totally healed and would 're-open' from time to time while taking the nopal and healing. While healing, the body is fixing those ulcers so they open up, or something, during the healing process and then close... if that makes sense. Like I said, I looked at her like she was nuts :) After about the 5th or 6th day, I haven't had any blood, no urgency even with my morning pops, mostly firm stools (something I haven't had in a long time), and a calm feeling in my lower abdomen (again, something foreign to me since '97). I can only surmise that her theory may be accurate, though my explanation and relaying it to you sucks.

All of this to say that I think it's doing something good for me and even if you are having blood while taking it, check to see if you are having all of the other symptoms that come with blood and give it a little time.

Best of luck to us all!

TroubledTurds
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Date Joined Jan 2004
Total Posts : 8006
   Posted 2/6/2015 7:58 AM (GMT -7)   
awesome - i can't believe that name hasn't been used before !

welcome - and rock on cactus juice :-)
dx'd with pancolitis 12/21/03
in submission - 2 + years no meds
current supplements:probiotics, vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 2x/week- no gluten, rice, corn, or soy & limited sugar - just good, healthy food, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with :-)

DMC2011
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Date Joined Jul 2011
Total Posts : 2504
   Posted 2/6/2015 2:42 PM (GMT -7)   
The nopal is in the fridge. It was already cut up in a conv. Bag so i hope that is ok. First glass tomorrow, positive thoughts.
Left sided dx. 2011
Current med: Apriso 4 a day
Low dose BP med
Migraine med as nec
budesonide 9mgs
Cortenema as nec
Canasa 1 as nec
Vsl 3 packet Every couple days



Supplements: Looking into supplements now, changing plan
Diet: no lactose, low fat, no uncooked veggies, No honey or HFCS!! gluten free, no carageenan!!!

Guardian7
Veteran Member


Date Joined Apr 2006
Total Posts : 2682
   Posted 2/6/2015 2:51 PM (GMT -7)   
juststud said...
awesome - i can't believe that name hasn't been used before !

welcome - and rock on cactus juice :-)


I was thinking the same thing. What an awesome name.

imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 5591
   Posted 2/6/2015 4:42 PM (GMT -7)   
I'm glad people are posting their results, so I'll post mine although they are very early because I rarely let things go downhill, preferring to quit sooner than later. I've quit nopal after 3 days due to extreme constipation that I haven't had since quitting gluten, and painful BM's as a result of the constipation. First IBS multiple BM's then extreme constipation--no fun.

Right now I'd rec. people who have diarrhea to try it but not constipation. I did not drink 8 oz. a day and after the first IBS episode stuck to my diet modification. I may try a smaller amount of it in a day or two and give it another shot, perhaps my gut needs to become accustomed to it. However I've had no blood at all unlike others who are trying it.

What a cranky piece of equipment my gut is. Glad others are doing well with it.
Current diet=modified Paleo+potatoes+dairy, no fruit or seafood (IBS),low fiber
In remission April 2010 after 10 years of UC with no remission ever
gluten-free (bleeding stopped) and dairy-free (less gas) started remission path+food diary
current meds: (9)Balsalazide daily
only as needed (rarely): VSL#3, mesalamine enema

CCinPA
Veteran Member


Date Joined Dec 2014
Total Posts : 939
   Posted 2/6/2015 7:08 PM (GMT -7)   
RF -- I like your girlfriend's theory!

I had more blood before I started drinking nopal. I haven't seen any now since 2/3. I've been seeing it every 3-4 days so will see what tomorrow brings. I almost hold my breath each time I go and feel so happy when there's no blood! Hope it continues!

Today was a bad day for me. Had 3 rather large, soft BMs ... no blood or anything though. I think it was because I just switched to balsalazide and stopped the asacol this week. Hope my body adjusts to the new med soon. I increased my nopal back up to 24 oz today so hopefully that will help get things firmed back up again.

DMC, let me know how that works. When I bought the pieces already cut up I split them down the center and tried to scrape the inner flesh as much as I could. Was a a pain though because the pieces were so small. Would be nice if the water got thicker without having to do that. Tomorrow your water should just be a little thicker ... will still be very watery but you'll know it's not just plain water and the longer it sits the thicker the water gets.
56 yo female diagnosed w/UC to mid transverse 1/1/13, scope 10/9/14 now UC or Crohn's colitis
Current meds: Asacol HD 2 tabs 3x/day, Rowasa 1/day, Capozide 1/day (hypertension). OTC: Loratadine 1/day, multivitamin 1/day, align type probiotic 1/day, kefir. Past: Uceris, prednisone, azathioprine- had to discontinue after 2 months due to elevated liver enzymes ALP,ALT,AS

RoyalFlush
New Member


Date Joined Jan 2015
Total Posts : 10
   Posted 2/6/2015 9:26 PM (GMT -7)   
CCinPA,
My experience has been to cut the cactus nodules off, cut in 3" pieces, slice them in half exposing the white insides and dumping it all in water overnight. By morning it's gel like, thicker a day later, and a tad thicker the third.

So far I haven't needed to scrape anything. Try this to save time, frustration, and some sliced fingers turn

Regarding constipation, I thought this was like aloe Vera in that the more one consumed, the more you'd go. am I wrong on this one?

DMC2011
Veteran Member


Date Joined Jul 2011
Total Posts : 2504
   Posted 2/6/2015 9:48 PM (GMT -7)   
I am not gong to drink it until tomorrow evening as I need to be on the golf course all day tomorrow!
Left sided dx. 2011
Current med: Apriso 8 day
Low dose BP med
Migraine med as nec
Uceris 9 mg until samples gone
Cortenema as nec
Canasa 1 as nec
Vsl 3 packet Once a day



Supplements: Looking into supplements now, changing plan
Diet: no lactose, low fat, no uncooked veggies, No honey or HFCS!! gluten free, no carageenan!!!

nix1262
Regular Member


Date Joined Jan 2015
Total Posts : 100
   Posted 2/11/2015 10:52 AM (GMT -7)   
I have noticed some on this thread have been drinking it for several days or weeks.  The original poster said something about only drinking it for five days and then he was done (unless he got any flare type symptoms and drank a glass at that point.)  Are there any tips for the frequency that we should be drinking, or how much per day?  Or is it more of an individual decision based on the severity of your disease?  I'm currently symptom free for the most part (I have UC) but I still have lingering pain on the lower left side.  Any thoughts would be appreciated!
Diagnosed with UC 2009, tried Asacol, Colozal, Lialda and Asacol HD with terrible results. Currently prednisone dependent, 10mg. Tried Imuran; liver numbers went through roof
Current Meds:
Remicade 5mg/kg every 7-8 weeks
Methotrexate 12.5 injection once per week
Prednisone 10mg; Proctofoam as needed
Fish Oil, Tumeric, Vit D3, Calcium, B12, B complex, wellbutrin, Florastor and VSL#3DS

DBwithUC
Veteran Member


Date Joined Feb 2011
Total Posts : 3923
   Posted 2/11/2015 4:08 PM (GMT -7)   
DMC2011 said...
;-). Slippery elm coats the intestine so that other meds are not effective. I don't think I have a prob with polys but will have to look up examples of what they are. Thx


this is logical, but has never been studied. may be rumor.

CCinPA
Veteran Member


Date Joined Dec 2014
Total Posts : 939
   Posted 2/11/2015 4:13 PM (GMT -7)   
Thanks, for the tip, RF! I just made a new batch and that saved me so much time! As far as the constipation goes -- I really don't know

It's been a month now and I am so so so close to feeling like I am 100% in remission. Going 1-2 times a day, fully formed, now seeing only very very faint blood every few days. When I started it was 2-5 (or more) per day, very soft & only semi formed with a good bit of blood every 2-3 days. And that had been going on since June. I have been drinking 24 oz of the water I make. Starting to cut back on the amount now so I don't get myself constipated. I suspect that everyone reacts to this stuff differently (just like every other treatment ha!). It hasn't constipated me yet, but since I am so close to being fully healed I don't feel the need to keep drinking that much every day. That blip I had last week I think was a bug and had nothing to do with UC or meds -- I felt funky all that day and was back to normal the next day and have been ever since.

Nix -- we don't know much about the OP of the original thread because he hasn't been back. All he said about dosage was 1 large glass in the morning and maybe another at night and that he only did it for 5 days. We don't know how bad he was or how potent his water was. I have seen pics of these pads that are really huge. The ones I get are maybe 6" long. I had been drinking 16 oz in the AM and 8 oz PM. I think everyone who is trying this is drinking different amounts and had different symptoms. Since you are symptom free and just are trying to get rid of some minor inflammation, you probably shouldn't drink that much -- maybe just try 8 oz a day and see what happens. This is all pretty experimental. There's a lot of information about the anti inflammatory properties of nopal online, but nothing except that original thread that says how to make the water.

I have no intention of ever stopping my maintenance meds, but plan to stop drinking nopal once I am sure there is no more inflammation and then use it as my go to at even the slightest hint of a flare. I don't see how it could hurt to drink it every day for a long time from everything I have read about this stuff. I just don't want to risk a big flare by stopping my meds.

Post Edited (CCinPA) : 2/11/2015 4:19:58 PM (GMT-7)


aguywithuc
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Date Joined Jun 2010
Total Posts : 3006
   Posted 2/16/2015 5:44 PM (GMT -7)   
imagardener2 said...
Nopal water has polysaccharides from what I read (I'm no scientist) so if that is a problem for your gut then beware.

I don't remember what slippery elm did for/against me, must have tried it so long ago cannot remember since in my 15 years I've tried most every supplement.


I am having to stop as now I have urgency. My gut does not like slippery elm either.

I found the experience interesing my daughter loved the Mexican Grocer and the Nopals were cheap and ornamantal in the big jar in kitchen. However it has been a slow slide backwards for me probably due to polysaccharides.

I believe the sincerity of the original Oregon poster, the mechanic and am quite sure this works for people - just not me. Got 7 for 1.50 so may try again when less going on.

ewafromwarsaw
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Date Joined Jun 2013
Total Posts : 1219
   Posted 2/17/2015 5:28 AM (GMT -7)   
i got inspired with your posts and went searching for nopal in poland, and i've found many stores importing it from mexico, however all their ads stress the laxative function of nopal and i must say i'm a bit scared because diarrhea is a disaster in my case
Ewa, 24 yrs old from Warsaw
Left-sided colitis, diagnosed in September 2012
Current meds: 2x2 Asamax (500 mg) and Salofalk enemas (twice a week)
Mutaflor or VSL#3

CCinPA
Veteran Member


Date Joined Dec 2014
Total Posts : 939
   Posted 2/17/2015 5:51 AM (GMT -7)   
Nopal had the opposite effect for me -- it firmed things up and slowed things down. Everyone seems to have different reactions to every supplement & med out there. This is such a weird disease I don't know how they could ever find a cure.
56 yo female diagnosed w/UC to mid transverse 1/1/13, scope 10/9/14 now UC or Crohn's colitis
Current meds: Colazal 3caps 3x/day, Rowasa 1/day, Capozide 1/day (hypertension). OTC: Loratadine 1/day, multivitamin 1/day, Ultimate flora probiotic 1/day. Nopal water. Past: Asacol HD, Uceris, prednisone, azathioprine- had to discontinue after 2 months due to elevated liver enzymes

DJB387
New Member


Date Joined Feb 2015
Total Posts : 18
   Posted 3/30/2015 12:40 PM (GMT -7)   
I cut up two leaves and put them in a large plastic lemonade pitcher(probaby gallon sized) with water and started with it last night. Drank a glass last night and a glass this morning...and I seem to be going backwards now. 3 bowel movements a day has turned into 4 already by 1 pm, and every time the stools are loose, unformed and messy. the pain that has slowly started to subside over the last month or so is returning and I am hurting today. I did not have this problem back in February before the flare when I used nopal fruit instead of leaves. I gave up on it after the doc put me on Uceris.
I wonder if I am using too much nopal in the water? I wonder if it is irritating the flare and hurting it instead of helping? Wonder if it and the Uceris combined is having a negative effect.

Post Edited (DJB387) : 3/30/2015 1:45:22 PM (GMT-6)


Burli
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Date Joined May 2003
Total Posts : 1251
   Posted 3/30/2015 4:47 PM (GMT -7)   
So I've read trough all these Nopal posts and one cannot get any good feedback from it. If I were a GI I would pull my hair out and if someone told me 'it works'. They get innudated with different things all the time.
Last night a buddy and I were talking and he asked if I ever tried coconut juice - I am appreciative but it sure is funny all these things.

I still, if not in remission and on Imuran, Remicade and Apriso, would try sarsaparilla as it seems the most intriguing to me of all these.

Just not seeing anything but anecdotal stuff from all the Nopal peeps. But, thanks for all the details and honesty in here about your condition, what else you're taking and all. Wonder if the original poster will ever return. It's a little sad how these things take off - we are desperate folks who are just begging for answers.

Great read from DMC on slippery elm not interfering with the medication you're taking. You really have to watch playing doctor.

One poster is on prednsione, Remicade, mesalamine and still thinking they can tell if Nopal helps - really? (I guess it's possible but seems really tough) I'll keep reading these.

A GI really advised drinking this? (fascinating - did he/she say anything about it?)
Male: born '66, diag. hypoglycemic '70; epilepsy '82, UC '84, lost hearing one ear in '04, Remicade (1/10weeks), Imuran 50 mg/day, Apriso, oxycodone - pain; Xanax - simple partial seizures; Carbatrol X - grand mal seizures

imagardener2
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Date Joined Jan 2010
Total Posts : 5591
   Posted 3/30/2015 4:47 PM (GMT -7)   
DJB
I always quit new things if bad symptoms appear, don't need to puzzle why. Nopal made me very constipated, to the point of pain, so I quit. Your gut may head in a different direction with nopal. So quit.

CCinPA
Veteran Member


Date Joined Dec 2014
Total Posts : 939
   Posted 3/30/2015 5:47 PM (GMT -7)   
DJB, the day after I first started drinking it I had more blood than I had been seeing. But it never got worse after that and that was really the last time I have had lots of blood. I probably would have stopped the next day if the blood had continued, but I gave it another day and am glad I did.

It has had a more firming effect on me so no ideas about the loose stools. If it's worse tomorrow you should probably stop.
56 yo female diagnosed w/UC to mid transverse 1/1/13, scope 10/9/14 now UC or Crohn's colitis
Current meds: Asacol HD 2 Tabs 3x/day, Rowasa 1/day, Capozide 1/day (hypertension). OTC: Loratadine 1/day, multivitamin 1/day, Ultimate flora probiotic 1/day. Nopal water. Past: Colazal, Uceris, prednisone, azathioprine- had to discontinue after 2 months due to elevated liver enzymes

deltaforce
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Date Joined Jun 2010
Total Posts : 2241
   Posted 5/12/2015 1:48 PM (GMT -7)   
Any update on this?

Anyone mind putting pictures of this up so that I can show that to the grocery store folks and/or tell me Spanish name of this thing.

I was actually considering getting powder to use it as a prebiotic but if its as simple as putting it in water, I will happily do it.
Dx 03/2007, left sided UC. Currently in flare
Sulfasalazine 1.5gm 4X a day, Vit. B12, 1mg, 1 tablet, Fish oil 2400mg , Butyrate 2-3 caps, Vit D 5000 IU, Benebiotics 2caps, Canasa,

Verapamil 320mg for migraine, Nabumetone 750mg as an abortive
uBiome discount 10% off any kit http://bit.ly/1xYWjbG

imagardener2
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Date Joined Jan 2010
Total Posts : 5591
   Posted 5/12/2015 2:02 PM (GMT -7)   
VIEW IMAGE

Nopal is the Spanish word for cactus pads (nopales is plural)
The nopales I bought had the thorns on so I used a knife to scrape them off before cutting them up and soaking.

CCinPA is the cheerleader-in-chief for nopal having much success.
I quit drinking it fairly soon because it caused v. bad constipation for me. Darn, another supplement failure.

Post Edited (imagardener2) : 5/12/2015 3:05:28 PM (GMT-6)


Bad Gut
Regular Member


Date Joined Feb 2007
Total Posts : 304
   Posted 5/12/2015 2:18 PM (GMT -7)   
O.k maybe a off the wall crazy question. Where I walk my dog nightly there are a ton of cactus - I believe them to be Nopal, but there seems to be two different strains of them. One strain has long needles but only one needle comes out of a single node. Then there is another type that has smaller length needles but at each node instead of just one needle there are three needles that stick out in different directions. My questions are they both Nopal, do they both work, is one better than the other? I have seriously considered "harvesting" some of them to try this Nopal thing but don't know which one I should pick if either one of them. I tried looking at the mexican market but they didn't have any in the store, my thought is because there is a ton of it for free in any given field around here.

imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 5591
   Posted 5/12/2015 4:44 PM (GMT -7)   
Best person to answer your question would be a botanist. There are many similar types of cactus. I don't know any that are poison, some probably are more tasty than others. Just don't pick any close to the road because of run-off pollutants.

A Mexican market without nopal? No way Jose, maybe they ran out or as you suggest people harvest their own.
Maybe you'll find them at farmer's markets.

CCinPA
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Date Joined Dec 2014
Total Posts : 939
   Posted 5/12/2015 5:56 PM (GMT -7)   
lol @ "cheerleader in-chief" :)

Nopal has kept me from going to biologics so far. Hope it continues!

Today was a little worrisome. Before my scope last week I hadn't seen blood for a long time -- probably only saw a faint trace 2 or 3 times since early March. Then a couple days after the scope I saw a small bit. Wasn't concerned because I knew that could happen from the biopsies. Only saw it once. Then this evening I saw a little again. Was about the same as last week -- just a little fluffy turd with a bit of bright red in it. Everything else is back to normal though. Going to go back up to 24 oz a day of nopal. It's possible the scope irritated things and it's taking a while to heal. Hope that's all it is, because the scope only showed a few patches of mild inflammation and everything else was healed with only evidence of past disease. I see my GI in June so I'll get the results of the biopsies then.
56 yo female diagnosed w/UC to mid transverse 1/1/13, scope 10/9/14 now UC or Crohn's colitis
Current meds: Asacol HD 2 Tabs 3x/day, Rowasa 1/day, Capozide 1/day (hypertension). OTC: Loratadine 1/day, multivitamin 1/day, Ultimate flora probiotic 1/day. Nopal water. Past: Colazal, Uceris, prednisone, azathioprine- had to discontinue after 2 months due to elevated liver enzymes

garylouisville
Veteran Member


Date Joined Aug 2012
Total Posts : 9088
   Posted 5/12/2015 7:25 PM (GMT -7)   
Good luck chief.
Pentasa (500mg) 2 pills X 2; VSL 1 pill X 2; Prescrip Assist Probiotic 1 pill X 2; Grape seed extract (1)400mg X 3; Vitamin D3 (1) 5,000 IU X 2; daily generic Allegra; DAO as needed due to dietary histamine intolerance

Gave me trouble: Zymactive, Renew Life Probiotic 80 billion, Florastor, high histamine foods
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