Old Hat said...
UC flares are indeed frustrating, but you're still a newby-- at Day 28! I'm wondering if you have any mesalamine intolerance. Back when I was DXed (1980), it was customary for gastros to Rx steroids 1st for severe inflammation, then to ease the patient on to Azulfidine (sulfasalazine) when symptoms subsided. Use of med combos picked up in the 1990s & IMHO, make it harder to gauge what the patient is intolerant or allergic to. You might ask your doctor whether you could try steroid enemas or suppositories instead of Rowasa-- at least for a few weeks. Does your doctor subspecialize in IBD treatment? If so, that might be why he's thinking of biologics already. In the past decade subspecialists have been weighing the side effects of steroids in longterm use against biologics, and tend to favor biologics as generally safer. I know a lot of the info you're exposed to now can be overwhelming; basically a newby needs to take very good basic care of him/herself with regard to diet & rest, avoid overexertion & try to optimize conditions for the Rx med(s) to work-- keep well-hydrated, that sort of daily personal thing. Some UCers are quickly responsive to med, others not as quick, still others may be intolerant or resistant to 1 or more types of med. It can take a while to find the most effective route to remission, plus one needs self-discipline to chuck known colon irritants like caffeine. You will figure it out. / Old Hat (34 yrs with left-sided UC; presently in remission taking brandname Colazal)
Those are some extremely wise and reassuring words. I really appreciate it.
26 year-old female from the US
Diagnosed with pancolitis 1/13/15
Currently on 35mg Prednisone (tapered from 40mg) & 4 Lialda per day
Started nightly Rowasa (Perrigo) enemas 2/4/15
1 Garden of Life Ultra Probiotic per day
Freeda multivitamins on their way in the mail
50mg sertraline (Zoloft) per day
Tylenol Extra Strength as needed