I've been on sulfasalazine since weaning off prednisolone following Dx of severe pancolitis in 2006 (misdiagnosed as IBS some years earlier - until developing complications, somehow I lived with it untreated for that long). That's the only maintenance med I've taken. Despite having an untreated episode of the disease for 6+ years, I have never had a flare-up since getting a correct Dx 11 years ago and starting treatment, and sometimes I wonder if the Dx was "correct" (I know it probably is; just I don't seem to fit the 'text book' descript
ion of UC). I know first-hand how serious UC can be, as I was critically ill soon after being diagnosed (had a minor stroke, a cerebral venous thrombosis, a week after starting treatment with prednisolone - it can be a v. rare complication of corticosteroid treatment).
I know it's not a sensible thing to do... but there have been a couple of episodes where I've gone off the meds for weeks at a time, and I've never had a relapse. The first time, about
6 years ago, I went off them for about
5 weeks. I had some minor 'urgency' return, but no increase in frequency of BM's or other symptoms. More-recently I stopped taking them for about
6 weeks and the only symptom I seem to have had is an increase in flatulence. But I'm taking them again. I never intended to stop altogether; it has been a minor 'experiment' of mine, I guess, when I'm in between script
s. I've never had a problem after re-starting the meds. I'm not downplaying the importance of adhering to your medications, but am just posting my experience - I'm sure some people probably couldn't go a week without their meds without causing a flare-up; everyone's physiology is different. During those periods, I continued to take aspirin as stroke prevention (as I have done for 11 years).
Interesting to read an earlier post that one doc said about
a third of patients don't have an ongoing problem/flare-ups. I wasn't aware it would be that many (if that figure is correct).
Post Edited (Plato8) : 11/9/2017 4:31:52 AM (GMT-7)