Posted 3/14/2015 7:21 AM (GMT -6)
I am so tired trying to figure this out.
I seriously felt better when I ate what I wanted (including gluten, even though I have been diagnosed as celiac, possibly mistakenly) didn't take so much medicine, and was a smoker.
I have followed my doc's advice, taken his prescriptions. Still having flares.
Have a closet full of various supplements I have tried with no benefit.
I've spent many hours on this board, celebrating and trying the successful suggestions, as well as feeling your pain and sadness from behind this keyboard.
I never ate "garbage". I ate healthy foods and only "bad stuff" on rare occasions. Most meals were home cooked and not from boxed convenience items. Rarely ate fast food. I have never been a sugar fiend, yet I am now insulin resistant. I have only been eating one smallish meal per day during the current flare, yet I am GAINING weight. I do not eat "gluten-free" food substitutes filled with starches with the exception of rice pasta 2 or 3 times a month and a gluten-free pizza crust maybe once per month. I eat potatoes or rice when I feel like it.
After years of chronic tonsillitis and sinus infections with RX for antibiotics, I was finally offered surgery for both. Problems 90% solved. I developed UC after a topical ABX for acne and quitting smoking.
Part of me wants to try living as I used to, just to see what would happen. I would commit to attempting repopulation and normalization of gut flora, continue buying the best quality food I can find and afford, and try to get out in the sunshine a little more. I'd also start the LDN I have been prescribed and commit to taking it. I've started and stopped in a few half-assed attempts.
I despise the thought of having to start smoking, but am confident that 2-4 cigs per day supplemented with my ecig can be handled.
Since I've given up soda completely, I would not start that again. I was drinking aspartame-filled diet soda. UGH.
I drive myself and everyone around me crazy with this gluten-free diet. A doc doing an endoscope for my complaints of heartburn (despite a double dose of Nexium which we now know to be bad for our digestive tract) biopsied my duodenum and it was diagnosed as celiac. Heartburn was my only GI complaint, way back then.
Am I crazy? I could be wrong, but what if I'm right? I follow a lot of health gurus, specifically those who talk mostly about autoimmune disease. They all have ideas, and many are contradictory. Don't eat this, supplement that (which many happen to sell).
What are your thoughts? Don't go easy on me if you should choose to reply.
I see my thoughts were put down in a rambling manner, sorry.
40ish yo female, first flare 6 months after quitting smoking in 2009
Severe pancolitis, hospitalized Oct 2014 x 8 nights
Using Asacol, Remicade, 30mg Pred, Wellbutrin, probiotics, thyroid replacement.
In addition to UC, I have also been diagnosed with AI hypothyroid and celiac disease.