London Lurker said...
UK is finally improving on monitoring this, my IBD nurse checks it from time to time but when I first asked in 2009 after reading studies my consultant was surprised. Interestingly the endocrinologists I have seen in the last year seem to be more engaged with it, asking about levels and telling me it is definitely appearing as a major protective factor against bowel cancer.
Does your nurse just check it as routine then? I've asked my nurse about
vitamin D in the past (I'm in the UK too) but she didn't seem to know what I meant. And I hate asking for specific tests, I don't want doctors thinking I'm a know-it-all who thinks I know better than a trained professional.
Not completely routine but when was on steroids last year and also if I ask, same with my GP. The consultant wrote vit D deficiency on my notes back in 2009 so I can point to that if they dither about
doing it. There are such budget constraints on healthcare in the UK that those who order tests may have to justify why they did so to budget holders so I help them out by pointing out that the testing is within protocol, as you know, it is rare for a doctor to have time to read back over all of your notes. Also, it is not too expensive to get it done privately if you have the cash and can't face the battles with the system.
Yes, one does have to manage one's healthcare team the right way to get the best out of them. I try to be humble but assertive. Have you ever seen this post by a doctor, very helpful I think more-distractible.org/musings/2010/07/14/a-letter-to-patients-with-chronic-disease
- as it says, once you find a doctor who has the courage to admit what they do not have experience of (I have luckily a GP like that at the moment), try to keep hold of them.