I was going to the bathroom 30x plus a day. It wasn't even poop half the time it was just blood and mucus. I was on a laundry list of drugs that didn't even work. I couldn't leave the house without crapping my pants. I couldn't sleep, eat or take care of my family. It was hell on earth for me.
Surgery for me was a no brainer. Was it hard? Hell yes. But it was such a small blip on the radar map of my life. Even if my surgery outcome was less than good I still couldn't have gone on the way I was going. So I had no where to go but up. No choice for me and I'm grateful every day for this procedure.
So in short I sing its praises because it's light years better from where I was.
I was in the same boat as Marianne. I had my j pouch connection surgery in February. Two months out and I feel exactly the same way as Marianne. They told me that it looked like a bomb went off in my large intestine and they didn't believe any amount of medicine was going to fix it. What choice did that leave? Surgery or waiting to die of complications from UC. That being said, just because surgery was the right choice for me doesn't mean it is for someone else. I don't judge anyone's choices. I also 100% support anyone that chooses to go on with an permanent ileostomy. At 35 years old, I wanted to give a j-pouch a shot. So far life is wonderful. If I had to I could live with an ileo forever because I was so much better with it. I understand there are complications but that's true of any surgery.
Also, I find the add about
smoking and the ostomy to be disrespectful to those of us that have or had an ostomy, regardless of the circumstances of what led to getting one. I usually don't get too fired up about
this sort of thing, but this add really irritated me. I just saw it on TV again last night. What about
kids with ostomies? I had more of a life with an ostomy than I had had in 2 years. There is nothing dirty about
it. I was also not ashamed of it or afraid to leave my home as the ad suggests. I was more afraid to leave my home when I was having daily accidents and using the bathroom 25 plus times a day. Just shows the lack of education regarding this topic. There is a change.org petition to remove the add that I have signed and hope others will too.
34 year old Female from the Buckeye State. Initally misdiagnosed Crohn's Oct 2013. 2nd opinion at Cleveland Clinic rediagnosed Severe Pancolitis/Ulcerative Colitis Jun 2014. 3 recurrences of C-DIFF Spring 2014. Fecal transplant May 2014.
Failed Meds: Asacol HD, Prednisone, Humira, Flagyl, Vanco, and Dificid
First surgery: 6/7/14 J pouch and loop: 10/22/14 Takedown: 2/13/15