It's really difficult in cases where prednisone doesn't et you to 100%. Did they do stool tests? I don't think the flagyl is a bad idea, I've taken it and i've never gotten worse from it. Some people do however get worse with antibiotics but flagyl is not generally considered an antibiotic that harms UC. It can be used to help reduce unwanted bacteria in the colon and that can be a good thing. I've taken it a bunch of times... I think the first thing you should try to control is the stress level. It's not going to make your UC go away but you will feel a lot better. Secondly, I would try to get the negative thoughts about
surgery behind you. Surgery, although it sounds like the worst thing in the world, often is the closest thing we will get to being cured. Third, you have to be aware, like DB said, none of the drugs work for everyone. It sounds like Remicade did very little for you (if anything - you can be sure the positive changes were from the remicade and not the steroids). It may be worth trying another TNF blocker, like Simponi, but you may be a nonresponder. If that's the case, you need to try something different. What is going to make it harder is that a lot of the drugs are not meant to induce remission but they are meant to maintain remission and in your case, it sounds like you haven't been able to get close to remission. I think I would try a different 5ASA and throw all the rectals at this. Where is the inflammation active currently? Throughout? If that's the case, rectals won't get you where you need to be. What about
6mp/imruan? Did they doctor mention this? They take longer to work but if you can start before you get to a lower dose of prednisone, while things are somewhat manageable, you may be able to get things under contorl.
It's really hard. it seems like some people have cases that pop up and are never able to be controlled. There was a member here (embersglow), she's from WI too. She had surgery after trying just about
everything for her UC. She got UC, never had a single medication work for her...
Entyvio is new and it's completely different from Remicade and other biologics but it takes a while to work. Definitely something for you to consider.
Co-moderator: Ulcerative ColitisDiagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: entyvio / Apriso
Post Edited (notsosicklygirl) : 5/9/2015 4:15:45 PM (GMT-6)