I've always found the IBD nurses to be really helpful. Always accessible and very knowledgeable. I've recently moved so I am under that care of a different hospital and my new IBD nurse in particular has been excellent.
Which hospital are you at, m8, so I can join it?
At my first two hospitals, the IBD nurses were nice and friendly enough but absolutely useless in dealing with my Crohn's or being able to answer questions about
it. At my current hospital, the nurse seemed to be slightly more knowledgeable about
IBD, but made up for that with her miserable demeanour and unfriendliness. I phoned her up once about
having a fever the day after coming out of hospital: she didn't quite say "so what, why are you bothering me with this?", but she almost did: her tone said it for her, tbh. (Three days later, I was re-admitted for a 9-day stay and an abdominal x-ray found I had toxic megacolon.) I should also add that I virtually never phoned up my IBD nurse, so she wasn't fed up with me because I had been pestering her with phone calls. Personally, I just don't think this woman had liked me.
There is another IBD nurse at my hospital now. I've had almost no dealings with this one, but she was helpful a few months ago when I was worried the Crohn's might have returned. She did actually get in touch with the relevant people and arrange for tests. Haven't spoken to her since, but I will give her a tentative thumbs up.
PS: Sorry to add to an already quite long post, but imo IBD nurses just don't have the experience to deal with the more complex, difficult or unusual cases. They're probably fine, so long as they are dealing with textbook cases which respond well to mesalazines or aza/6MP. Otherwise forget about
it. They're out of their depth. It's not like GIs take over when this happens either. You still get seen by the same clueless IBD nurses or junior doctors, unless you specifically request to see your consultant. (It took 10 years before I learnt you could do that.)
Post Edited (NiceCupOfTea) : 6/7/2015 6:24:07 AM (GMT-6)