Can't sleep tonight trying to find a way to deal with this disease and all I want to be able to do.
Quick history always had some small flares since my 20's. 2 to 4 weeks at the most to get out of a flare. Until fall of 2013. Got out of that flare just this past January 2015. I took some time off work during the flare at its worse but mostly worked during it.
Last December I decided to try 2 enemas and 2 supositiries a day. After 2 weeks I was better and by the end of February I was fine. The 2 enemas a day implied that I got up every morning before going to work real early take my enema and go back to bed until 6:30 am to get up for real to go to work. It was hard but I was motivated. In March I slowly went back to only one enema a day. Yee ! I was so happy, 2 supositiries and one enema a day. In April 3 enemas a week and one supositiry a day. That was a real bonus. All that time I work only 4 days a week and my plan was to do that for a full year. Just to have time to enjoy life.
I felt I had enough hard time that I deserved to have some good times. Well well it did not go as planned. I started the premenopause symptoms in mid-April, not sleeping at night because I got up with night sweats 2 to 4 times a night. The FK flare came back. Started back on the enemas once a day supositiries 2 times a day. I'm now taking hormone replacement therapy and the night sweats are much better. But my flare does not improve. I have more blood more mucus and now the D.
I guest I have to go back to my 2/2 a day. However, I fell I don't have the courage to do that getting up real early to have my enema and go back to sleep until 6:30. Even if I just work 4 days a week. I just dont want to take a sick leave as I find it even more depressing not to work. Plus I fell my employer could find that I use my disease to kind of get bonus vacations. That is one thing with UC ... People don't really get how hard and depressing it is some times. I work in a pretty large office (more than 1000 persons) the bathroom are hell to me because the are the type you have in large shopping center, you know the little booths side by side with walls and doors that don't go up all the way up and down.
I'm depressed and just don't want to go throughout all of that again. So I had the idea to ask for at home work. It is allowed but under very special circumstances.
Tomorrow I will print out my last 2 years of medical claims. To show to my supervisor. Showing her the periods I did not have much RX for UC and the periods when I did. just she sees that all time I took off matches with when I had cortisone enemas and that my RX expenses where more when I took off from work. I also want her to see that for a periods of time I was taking 2 enemas a day and tell her what I had to do to do this and work. I don't want her to fell sorry for me but I want to make sure she gets the impact of a flare.
I want to tell her how tired I'm of calling in sick and how I fell working at home would relief the stress.
Do you guys beleive it would be a good idea ? Cause I fell she does not know how UC impacts your life sometimes.
2 times I tried to go shopping with my boyfriend this weekend for picking up flowers for the back yard and we had to give up and come back home because of my sudden need to go to the bathroom.
I'm feed up right now to fell like I can not perform as I want. And have to guts to fight.
Woman 45 / diagnose with UC in 1990 at 20.
Another flare again.
Med: Salofalk enema and supository
LOW FODMAP diet.
French Canadian so please excuse all spelling and funny mistakes I might make. ;)
Post Edited (Chantrelle99) : 6/7/2015 10:52:16 PM (GMT-6)