Feel sad that so many young people have surgery and in fact are encouraged on here to have it. I am 68yrs old now and apart from an accident last year, have been pretty good for the last 15 years. Because surgery is right for you you shouldn't push it on to other people. People cope in different ways. My life has been appalling marriage wise which no doubt contributed to my symptoms, so I think most people would say how have I managed with that and UC, but I did. If my daughter/son had it I most certainly wouldn't say have surgery, and moan because there is no medical miracle on the horizon.
I've been struggling with it for ten+ years now and I am missing out on life. I don't want to have excruciating pain and multiple BMs every day for the rest of my life. i don't want to plan my day around BMs and i don't want to eat based on how i feel every day. I don't want to worry about
accidents. I want to do fitness and not feel weak and limited. I want to take a month to travel and not worry about
medication and toilets. I want to ride on a plane or train and not sit next to the toilets. I just want to enjoy life, i don't want to spend my whole life concerned with UC symptoms.
This illness is very individual, and in mild cases, i could see living with it and having breaks from it but some cases don't respond to anything and in those cases, surgery can be a way out. I definitely do not intend to push it on anyone else but i think it's the right thing for me. I think it's the only thing left for me. After nearly dying from UC meds a few months ago, I see that while surgery sucks, maybe i can get my health back and stop being so miserable and negative. I do not have or intend on having children so I don't worry about
how I would deal with a child with this illness but i think it's narrow minded to think that you can control this disease to the point that they wouldn't need surgery, and if it came to that - I would learn everything possible and weigh the options.