Yes, if you need regular use of any steroid regardless of method of application: oral, suppository, enema, etc. I'd get on stronger uc medications to finally kick steroids for good. 4 lialda a day is good, no canasa suppositories or rowasa enemas at the moment? I'd add them back in, and if that doesn't work, then strongly consider immunosuppressive medications (Imuran, 6mp, or aza).
Steroids of any type are bad, bad news when used long term (glaucoma, osteoporosis, type ii diabetes can happen at any dosage and regardless of route taken), they're short-term rescue medications only...
Thanks, ipoop. I am actually on canasa now with the budesonide...need to update that. We have talked about
6mp or aza, but I'm pretty freaked out by that idea. I'd almost rather go onto a biologic bc I'm afraid of pregnancy risks with thiopurine drugs. I know there is data to support their safety, but I'm not comfortable with it.
Quincy: nope, I've never been on retention enemas. Had plenty of stool tests though. Nothing but good old UC.
Diagnosed with ulcerative proctitis in 2010-canasa
Many flares along the way
Hospitalized with major flare and diagnosed with UC in June 2014- taken off of canasa, put on pred (off now!), 4 lialda/day
Flared again (minor) in Feb 2015. Tried Cortifoam (no luck). Was put on Canasa (no luck), Anusol (nope)
Current meds: 4 lialda a day, 1 budesonide suppository nightly