Just a few entyvio side effects, anyone have their own?

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therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3543
   Posted 6/12/2015 6:45 AM (GMT -7)   
I get diarreah bad for a few days(as if I ate a ton of ice or drank a ton of milk, something that doesn't agree with my gut, you can hear the diarreah running through my colon, making its way out) light headache,tired (for two days) and burning in my stomach and guts for days!! The diarreah reopens my fissure :( I go back on pred and cipro, it s like a cycle. I know I had a uti after my last infusion, cipro helps me a ton!!! My UTI could be caused by me pooping my pants in the car and having to sit in it until I get home to clean and shower? My rectal doc says people take cipro for weeks for fissures . He approves of it.

I ve had all my loading doses weeks, 0,2, 6 and 8 now I'm on every eight weeks, no improvement yet. The company website says stop at week 14 if no improvement where I've read it take ups to week 52 for people to achieve remission, those who did anyways.

Anyone experiencing side effects
UC since '05 and DX with chronic Lyme's in '10. Lialda, lexapro, trying Uceris .5asa never put me in remission. I eat well, exercise , pray and use my faith, but sometimes you still need medication. I tried without it, bad idea.i'm not out trying to save the world, just trying to make a difference, with a smile and a positive attitude :) a fighter in life!

Indycat23
Veteran Member


Date Joined Apr 2011
Total Posts : 661
   Posted 6/12/2015 8:22 AM (GMT -7)   
I've noticed a few side effects. I get really bad fatigue about a week after the infusion. Only lasts for about 24 hours but it's pretty severe for that day. Also have noticed some dry skin/eczema problems since I have started the infusions. I do get about a 4-5 days of bad D in the middle of my infusion cycle for some reason too.
Diagnosed 3/2011 w/ pancolitis
Current Meds-Colazal, Rowasa(3/2/15) VSL & Entyvio-(8/5/14)
Prednisone from 4/1/11 to 10/31/14--finally done!!

Failed/Tried-Remi, Imuran, Humira & Simponi

2015 Plan---Remission or Surgery..time to get on with life.

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3543
   Posted 6/12/2015 8:35 AM (GMT -7)   
I feel so much better taking diflucan a tablets 200mg for a day or two, it could be a fungus that you have? Not sure, but I think people have yeast issues and do not realize it. Sinus infection can be related to yeast which is a fungus. Well for me anyways it helps a ton. My NP who is also a MD and specializes in LYmes disease totally believes yeast is a real issue and should not be ignored . I really like him and trust him.
UC since '05 and DX with chronic Lyme's in '10. Lialda, lexapro, trying Uceris .5asa never put me in remission. I eat well, exercise , pray and use my faith, but sometimes you still need medication. I tried without it, bad idea.i'm not out trying to save the world, just trying to make a difference, with a smile and a positive attitude :) a fighter in life!
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