TheITIS Thanks for taking the time to make these posts, which I just found. I have found them very helpful, as I am just about
4 weeks past my fourth infusion. I think, in a way I am getting better at times, but then again at times, I think I might go backwards. Since my major problem had been constipation, vs d, in the past, it has been really hard to tell. Doc thinks I am showing progress and pointed out entyvio takes a really long time to work.
4+ yrs with UC. Also GERD, COPD, Fibro, OA, Sleep Apnea, RLS. Previously, PCOS and endometriosis. Tried Apriso & balazide (intolerant), canasa, predisone. Almost 2 years of 6mp & Remicade caused severe joint & muscle pain & weakness and had to stop in late 2014. 6mos med free caused a flare and severe inflammation. Now on Entyvio, prednisone and arava since 5-15.