First of all, thank you Barnsbury for sharing! I had asked my GI (who also participated in trials) the longest she'd seen someone on it successfully and she said 5 years, so that's interesting to hear how long you made it.
I'm two weeks out from my next infusion but wanted to post an update for transparency:
I've been having D on and off for a few weeks. It started with a salad I ate--I shared it with someone who did not get sick, but that gave me some bad gas, nausea, and D for a couple days. Figured I picked a little bug. It got better until I get my period, and the D started up again (also not unusual, but very severe this time--my period was more heavy than usual so hoping it was correlated).
It's been on and off since, though I'll say it doesn't feel very UC-like. It feels more in like something going on in my stomach, than my lower GI tract. Also, I've been eating kale salads and other
foods, SO not the best diet choices :) I also don't have the fatigue or aches or pain associated with a flare.
I'm traveling for the next two weeks which generally makes me a bit more constipated so we'll see how it goes. I will update after my next infusion (and will be asking for bloodwork to check inflammation) to see if there's a noticeable change post infusion.
27, dx'd in 2007
1st Entyvio infusion 8/2015, responding very well
Currently: Entyvio, Colazal, Florastor, VSL #3
Previously: Apriso (Hair Loss), Flagyl, Prednisone, Mesalamine Enemas, Tinidazole, Align, Lialda, Imuran (Allergic), Asacol (Ineffective), Remicade (Allergic), Humira (Ineffective), Anusol, Canasa, Cortifoam