MY STORY - THEN A QUESTION
I don't have a GI doctor, I live in Ontario, CANADA. I have not had a colonoscopy for about 8 years due to it being like being tortured in hell the first time. I tried pentasa and prednisolone soon after having it and being diagnosed with UC and they both almost killed me and I think I got diabetes from pred plus eye damage so I never want to take them again.
I have not had any contact with the GI (and never will) who did my first colonoscopy because he would not help me out at all with anything I wanted to get after doing pred and pentasa such as ldn or other things which I have had to get out of country due to Canadian laws about prescriptions.
I tried all the various diets and I found that it is humanly impossible for me to stay on them for any long period of time before I become literally possessed to go eat something I want again. LDN helps me a tiny bit but nothing more.
So now it is like 8-9 years since that trip to Mexico where I first got UC, and now I feel I want to try Entyvio as the research I have read seems it may be safer then other options with similar results or better but I don't even know if doctors in Canada will allow me to get it without going on remicade or pred again for some period of time first which I refuse to do.
I have written many GIs asking if they prescribe entyvio giving my long story and NONE of them even cared to respond to me at all.
The last 5 months or so I feel like I may now have cancer and am trying to get a colonoscopy, but because my anal skin is so damaged and torturing me in pain to the point I am 90% insane I don't think I can get it done unless I can figure out something to temp heal it, anasol, prep h and prescription creams did not help me.
I am wondering if anyone knows if there are rules for getting prescriptions for entyvio infusions and if someone like me who has not been on any medications for years except LDN occasionally could get on it without having to be first go on remicade or pred or something else?
You should start your own topic. I had no trouble getting entyvio. I had tried remicade, but I could have opted for Entyvio first. The problem with Entyvio is that the response rate is lower than Remicade, that's why I tried Remicade first. In the US, it depends mostly on your insurance plan. Some require failing other meds, some do not. You probably want to direct your new topic to people in Canada, as they know a lot more about
the healthcare there.
As for having a scope with a sore bottom, I would recommend trying a protective barrier, calmoseptine is good. I would think some type of cortisone on the area would help to get it managed. When you're scoped, you're under anesthetic, you shouldn't feel anything. You also may consider seeing a colorectal surgeon to have your anus examined. My surgeon was mr anus, seriously. He made me feel at ease and he was understanding and gentle. I never found that my GI was great with the external butt stuff. I am not recommending surgery, just saying that colorectal surgeons can probably help you get to the root of the problem and provide cream or a prescript
ion that can help. I had yeast once and my butt was in dire shape. I was able to get it fixed up nearly over night with a simple script