I rarely see posts about
it these days either and I don't know the status of the members who were using it for their UC. I know we had a few who swore by it and had amazing luck but we have also had a lot of failed attempts. As with everything, it seems to be very individual. I asked my doctor about
it and she said there is really no study that shows it beneficial, but who knows, is there a study showing otherwise? I never had much luck getting it prescribed but I guess I didn't try too hard... asked my GIs, none were
open to it.www.healingwell.com/community/default.aspx?f=38&m=2072374
Boxermom is doing entyvio now so we know LDN didn't keep her in a good placewww.healingwell.com/community/default.aspx?f=38&m=2204683www.healingwell.com/community/default.aspx?f=38&m=2105367
Probiotic had surgery so I know it didn't end up being his saving grace.
Peace&Harmony went on to have surgery.
therearemiracles tried without success.
it's hard to track because a lot of the posters on the threads are not regulars and a lot of the people who don't have success don't post in the threads, just move on to the next thing or surgery...
Another thing i've noticed is that people who have luck with it are usually doing a bunch of other things at the same time, some are on UC meds, some on really strict diets. Difficult to tell what is doing what.
I have also read conflicting things on whether transdermal LDN could possibly be effective for UC... There are a lot of questions and not a lot of hard facts.
Co-moderator: Ulcerative ColitisDiagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: entyvio / Apriso