Ladies...missed/stopped periods?

I've never missed a period even when flaring badly.

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Moderator UC and Breast Cancer forums
Sheri-42 years old

Diagnosed UC/IBS 04/09-Left sided 01/13 Endo showed gastritis and Colonoscopy showed only 2 cm of rectal inflammation 2015 Flex Sig showed everything clear and biopsy were clear too.
Diagnosed in Jan 2013 with Chronic Uticartia
Meds-2 Lialda, Aciphex, Allegra, Singulair, Vitamin D3, Hydroxyzine (as needed), probiotics, Canasa 3xwk

I'm 33 as well and had the same problem a year ago when I got off of birth control. I had been on the pill for 15 years (with the exception of 2 pregnancies) including after my UC Dx, with no missed periods. I was in a long term flare at the time I stopped the pill and was pretty anemic (I've battled anemia on and off all of my life). My GYN prescribed a course of progesterone to "reset" my system and I finally had a light and short cycle about 3 weeks after. My cycles remain light and short, but I notice they are further apart and lighter when I am bleeding from a flare. As soon as I up my iron supplementation, they become more "normal". My GI joked that I just don't have enough blood to give up from both ends, so my cycle gets short-changed. But I really think he's onto something. Maybe have your doc check your hemoglobin levels. You could be a little anemic and getting "short-changed" because of it.

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Female, 32
dx'ed proctosigmoiditis June 2014

Current meds:
Lialda 4.2mg 1x daily
Uceris 9mg 1x daily
Iron supplement 1x daily
Venturing into essential oils and alternative remedies...

Mine stops when I'm on prednisone. If you have been on steroids recently that could have interfered with it.

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-2005 dx proctitis, 2006 dx pancolitis, pathology reports on occasion have suggested crohn's colitis, 2007 10 day hospitalization due to UC

-Current Meds: Colazal 6750 mg/day, Canasa 1000mg/day, Lexapro 10mg/day

-Past Meds during flares: Lialda, Asacol, Prednisone, 6-MP, Cortifoam, Levaquin, Omeprazole, Bentyl, Cipro, methylprednisolone, protonix

-Additional Supplements: probiotics

notsosicklygirl said...
Mine is like clockwork. Were you on a pill without a period? I hadn't had a period in years due to a mini-pill that you take every day. I stopped it and my period came back right away. I am sure yours will be back. 33 is young. Go to the OBGYN and get checked out. Maybe it's something hormonal but I am sure it will be back. I wish mine would go away and not return. I think bananagirl has issues with missed periods. do you have low body weight?

I was on Ortho Tri Cyclen so I still got a monthly period on the pill. Maybe my body is all screwed up now without it. Plus, I was on those Budesonide suppositories for a few months. I do probably have what would be considered low body weight. I'm 5'8 and weigh about 115 pounds.

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Diagnosed with ulcerative proctitis in 2010 and changed to UC in 2014.
Many flares along the way, one hospitalization
Past: prednisone, canasa, anusol, cortifoam, budesonide suppositories
Present: 4 lialda a day, canasa (still flaring/Entyvio next)

Might not be UC related. My periods were all over the place when I came off the pill.

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Diagnosed IBD indeterminate. Pentasa 2g/day. Salofalk enemas and suppositories (up and down as needed). Metamucil caps daily, critical care 50 billion probiotic daily. Previous: asacol HD (switched when I started pooping them out whole).

Congrats!!!! I had to take four tests before I got a positive too! Stay well!!!

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Female 42 years, married, one daughter.
Crohn's diagnosed in 1995.
August 2012 - Emergency surgery due to perforation in colon during a dialation procedure for a stricture. Ileostomy saved my life.
Sept 2014 - total protectomy with rectum removal, new end ileo & parastomal hernia repaired. Finally kicked Crohn's butt!!
Aug 2015. - Butt wound revision....hoping it closes this time!

Congratulations!

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Female, 33
dx'ed proctosigmoiditis June 2014

Current meds:
Lialda 4.8mg 1x daily
Rowasa enema as needed
Iron supplement 1x daily
Zyrtec 1x daily
Prescrip Assist probiotic when I remember :/
Venturing into essential oils and alternative remedies...

That's great. So there you go, things weren't wacky afterall :)

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Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: no meds. Step One J-pouch Surgery Complete!

Awesome!!!!
Congrats!!

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20 year old female
Diagnosed with severe uc on 4/27/15
Remicade 10 mg/kg
Imuran 50 mg
Multivitamin, biotin, calcium, and vitamin d

Thank you all SO much for all of the congratulations!! Such an incredible surprise!!! We were trying, but without luck so I really thought that this was just another wacky period! Plus, I had tested negative 3 other times!! Have my first ultrasound on Oct. 1st!!

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Diagnosed with ulcerative proctitis in 2010 and changed to UC in 2014.
Many flares along the way, one hospitalization
Past: prednisone, canasa, anusol, cortifoam, budesonide suppositories
Present: 4 lialda a day, canasa (still flaring/Entyvio next)

It's possible for you to not have a normal cycle when flaring. If you are sexually active, then make sure to take a pregnancy test, just to rule that out. Lialda does not stop periods.

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Moderator Ulcerative Colitis
John, 40, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa
If you fart really loudly in public, just yell "jet-power" and walk faster

I have PCOS and have been on the pill since I was 16 as a result. I probably would never get a period without the pill, but with it, I get symptoms every month, but only bleed every few months. *shrug* When our bodies are stressed, it can cause us to miss periods, so I can see period loss being related to a bad flare. Lialda shouldn't mess with one's period, though.

Celeriac, have you seen some of the more recent theories about how PCOS may be autoimmune? It is apparently associated with higher rates of certain AI disorders.