If there is anyone who has successfully managed this disease then it is you, for over 20 years. Your point is well taken. I am sorry if anyone's feelings were hurt.
I'm not hurt at all by what you said, but maybe shocked....I'm just saying that I hear it a lot from many people who actually don't want to hear the "real" issues people have. It's a brush off and a blatant way of saying "what do you have to complain about
...this is far worse...consider yourself LUCKY you're alive".
I manage my UC well...normal ups and downs that I expect.
However, I have a lot of other stuff that I have that I'm getting really ticked off about
. Freaking sucks continually..with not enough answers yet. But it's exciting when some come to light. There are many changes I have to implement....but I'm mentally tired and depression doesn't help.
Therapy has taught me to not be bitter, but it's also taught me that life isn't all or nothing. Coping, basically, is a 24/7 minute by minute process, and not that there aren't really good days, the continual stuff has me consumed.
I still function...but am more concerned than I want to be.
So, no hurt from you. Just wanted to voice my opinion that some things said as you did are actually more of an punishment than support.
Oh, and I don't mince words and I pretty much tell it how I see it and I swear like a sailor more easily than I should (carefully around whom)....but from this forum (and a few warnings), I've learned to choose my words a lot more carefully....because I value the forum and those here.
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!