Still braindead >_>. But my stomach is a bit better at least. The true test will come later on today, when the day's food hits the lower GI tract.
iPoop - Steroid enemas are certainly a lot safer than oral or IV steroids, that's true. But I think I'd still rather avoid steroids entirely if I can manage it. My GI actually prescribed me Salofalk enemas for diversion proctitis in the rectum several months ago, but I never tried them - really wish I had now, while my proctitis was still mild!
nssg - My Crohn's just gradually got worse and worse over the years. When I was first diagnosed, I was almost symptomless apart from loose stools. It got a bit worse but for the next 5 years it remained pretty mild in general. I reasoned I'd rather have diarrhoea than constipaton, so I wasn't too bothered about
the mesalazine. I assumed my disease would always be like this, but in 2005 I fell really ill and things were never the same after that. I thankfully at least never had the financial aspect of treatment to worry about
- I dunno how some people cope with it, it sounds like such a nightmare.
If things carry on as they have done for the last 2 days, I'll try enemas or suppositories. Imodium definitely doesn't help, sadly - my surgeon prescribed me a whole load of it, most of which I've got left. Yeah, Entocort is another possibility. It's got the massive advantage of not being a rectal med. On the the other hand, it's that whole steroid-ey thing all over again. I do realise it's a topical steroid and not nearly as systemic as pred, though - I'll think about
Edit: imagardener - Sorry your post wasn't there earlier! Couldn't agree more about
most GIs completely ignoring the mental aspect - my current GI is the only one I've met who has acknowledged it exists. I don't think he really gets it, even so, but at least he has shown signs of trying to understand what it's like, which is more than I say for any of my past IBD nurses, GIs, etc.
I've never been to Amsterdam, no... Well, not quite true, I went when I was 17 but that was long before I had Crohn's. It sounds crazy... but I might genuinely look into it. I don't have any supply over here, marijuana not even being legal for medical purposes and me being too much of a recluse to know anybody who can supply me with some. I've wanted a holiday for years anyway. It's just whether I can overcome my numerous fears to go to Amsterdam for a weekend... :-/
Post Edited (NiceCupOfTea) : 11/3/2015 7:28:35 AM (GMT-7)