Trixy's Got Butt Trouble said...
Okay, so my highest is at 775 and my doctor is telling me if it gets any higher and I don't start Entyvio NOW, it won't work and I will have to have my colon removed. What the heck?? Here's the thing, I feel GREAT right now, but I am on Imuran and Prednisone and LDN. Last test was 680 and I'm waiting for the results of the one I submitted last week. Fingers crossed.
The actual numbers don't matter that much. If you are above the cut off (depends on lab), then you have intestinal inflammation assuming the test is accurate. The numbers don't really matter so the difference between 600-700 is not significant--you are flaring either way.
When I had one that was greater than 2000---it was a very mild flare.
I would look at your symptoms and the results of your scope to judge severity of the flare and not the fecal calproctein values. They are confirming that you are still in a flare though but not the severity of it.