I can hold it too. I am only a few weeks since my 3rd step and I have been going a lot but I can wait if I need to or want to. I was out shopping and I felt the urge and I kept doing what I was doing, the urge went away. I didn't rush to get to the bathroom when I got home. At the same time, surgery is not easy. It has the potential for huge benefit and also the potential for huge risk. It should be a last resort, I don't know if hair loss would be a reason that would drive me. Hair loss with severe symptoms, yes, but well managed UC, I don't know if I would go to that extreme. I would try to find the root of the hair loss - surgery may or may not help depending. I am still tired. Always was, probably always will be. I was tired for many years before I was diagnosed with UC.
You are only a couple of weeks out from surgery, with any surgery it takes time to recover from and regain your energy. You should be judging your energy levels 3-6 months out.
You should monitor your B-12 levels it can be an issue with J-pouch patients. My b-12 levels are normal but when I get a B-12 shot I feel great for a few weeks. I just wish my GI would write me a script
for it; I need to push a little harder for it the next time I see him.
DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cyclosporine -- Twice
3-step J-Pouch surgery: 2013 & 2014
Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Cimzia and Sulfasalazine