I think the important difference is that Keith's pouchitis is well controlled with meds. For those of you who ever had any meds work, I think we can all agree that any kind of -itis, when it's well controlled with meds, is easier to live with than uncontrolled inflammation of any kind.
To the person who asked a ways upthread about
rectal inflammation -- I had very bad rectal involvement before surgery and even after the first operation. My rectal cuff is what I would call "sensitive." It doesn't cause symptoms for me on a regular basis (as far as I know it is not inflamed), but if I irritate it with a lot of high fiber foods in a short period of time, I will have some urgency and increased frequency for a few days. It goes away by itself (no meds). Popcorn, nuts, salad don't cause problems for me. "Woody" veggies like asparagus and squashes can be an issue if I make a whole meal of them. Otherwise the past rectal inflammation has not been an issue.
dx'ed UC pancolitis 5/12
past meds: asacol hd, VSL#3, apriso, rowasa, xifaxan, 6mp, cortifoam, pentasa, cimzia, canasa, butyrate, flagyl, cipro, prednisone, remicade, methotrexate, cholestyramine, cortenema
current meds: none!
step one: colectomy, end ileo 1/16/13
step two: j-pouch construction, loop ileo 5/1/13
step three: takedown 7/31/13