You do this in every j-pouch surgery thread and then the thread gets off topic.
I do have direct experience of what you are talking about
. And you can tell me I don't have a j-pouch 'til you're blue in the face, but I have the next closest thing to it: a rectum connected to the small bowel and no colon.
I don't have fistulas or abscesses or probably even a stricture. (My flex sig report didn't mention one, but I won't completely rule it out until I've asked my surgeon or GI.) I just have proctitis, which may not even be Crohn's. (It's a long story, but my surgeon cast doubt on my Crohn's colitis diagnosis at our last appointment.) What I'm trying to say is, it's not Crohn's-related complications which has been making my life utterly miserable, it's rectal inflammation.
And it's not Crohn's or UC 'lite'. As far as I'm concerned, it's the full thing.
that it is. I don't think there is much understanding of it at all. They don't know whether it's crohn's or colitis of the pouch. I don't think they know much of anything :( I would think the inflammation could be varied, mild/moderate/severe. Oddly, often it responds to antibiotics, which is uncommon for UC. Healthy rectum would be a dream!!! None of us seem to be that lucky, haha.
Pretty much sums it up.
I know there are many different results out there, but I think considering the amount of fear an trepidation I had for at least two years before I did it, and all the questions I had, I would be remiss if I didn't share my success....so far. Not that anyone said I shouldn't.
Sorry if I derailed your thread. It wasn't your original post I had any contention with at all. Well done on having a success story.
I could only wish everyone could have a similar success story.