So I had my double dose infusion of remicade last Thursday (10mg/kg). I'm in a sever flare and had lost 25 lbs, was going about every hour. Thursday was my 4th infusion but my levels showed no sign of remicade before the 4th infusion, as in the loading doses didn't work. Since Thursday, I have been able to not go for a couple hours at a time, sometimes even 5-6 hours. I am also on 40mg of prednisone, during the day it seems as if the blood mostly goes away, and if I do go there's more substance, even if very lose. My question is, does this sound like the remicade is finally working? How long after a infusion can you see any kind of improvement and what does that improvement curve look like?
Any advice is appreciated. I'd just like to know if the remicade could potentially be working with this double dose and that there is hope and it will keep improving or if this is as good as it gets right now.
Hey I was just wondering how you were feeling. I started my first infusion this past Monday.
28 year old female
Diagnosed with UC in 2002
Physical Education Teacher
Past Oral Medications: Asacol, Lialda and Apriso
Past Rectal Meds: Canasa and Rowasa
Current Meds: Remicade and Lialda
During Flares I've been on: Prednisone, Uceris, Hydrocortisone Enemas and Suppositories and Methylprednisolone Pack
Pribiotics: VSL 3DS
1 Hospitalization in 2003