Posted Yesterday 12:04 PM (GMT -7)
I was diagnosed with Ulcerative Colitis in early 2002, and from what I'm understanding based on other people's horror stories, I have been in remission for about 13 years, as I've never had any notable issues besides gas and bloating.
about July of 2015, I began experiencing intermittent bouts of diarrhea coupled with extreme urgency to defecate, which would last one to two days, cease, and then return within a week or so. Eventually, the remission window period began closing, until I was pretty much having urgent bouts of diarrhea every day, almost all day.
I went in for another colonoscopy (making this my fourth routine colonoscopy since I was diagnosed), and everything came back "clean". Basically, there was no visible inflammation, no polyps, nothing that would indicate any problems.
The biopsy came back showing that I was having "microscopic inflammation", which the doctor says could certainly be causing my chronic diarrhea.
Now, I've done a little research on "microscopic inflammation" and found the condition Microscopic Colitis (consisting of the sub-categories Collagenous Colitis and Lymphocytic Colitis), both of whose symptoms match mine pretty well. The doctor has said multiple times that the biopsies I've had, past and present, have come back "consistent with ulcerative colitis". But... Ulcerative Colitis is classified by visible colonic inflammation, isn't it? This Microscopic Colitis is classified by having inflammation on a microbial level only, which is what appears to be happening with me.
It's also confusing because everything I've read on Microscopic Colitis clearly states that it is NOT related to Ulcerative Colitis or Crohn's Disease; and yet, for me, they seem to go hand-in-hand.
So, do I have Ulcerative Colitis? Microscopic Colitis? If they're not related, can I still have both? Can symptoms of Ulcerative Colitis be present even without visible inflammation (from colonoscopy)? In other words, can Ulcerative Colitis flares stay with me even without any significant colonic inflammation? Can Ulcerative Colitis inflammation be microscopic? I'm so confused.
Male, 36 Years Old (Dec. 1979)
Diagnosed with Ulcerative Colitis Jan. 2002
Meds: 2002-2004 Asacol 2002-2004; 2004-current Lialda 2.4GM to 4.8GM per day, depending on flares
Metamucil for stool-forming