Many, many thanks to all of you who responded to me and offered support and ideas! It really means a lot.
I am at a stand still right now trying to figure out what I want to do. I have been doing some research also and am beginning to wonder if I truly have UC or if it is just severe IBS. In all the things I have read they say UC has bloody diarrhea and pain. I have never once had blood in my stool and no pain at all other than my rectum obviously gets sore from pooping so much. My last Colonoscopy was completely normal. That may be because I was in remission or it may be because I don't really have UC. I don't know, I know I am probably just in denial but I am going to talk to the doctor about it and see if trying IBS meds first would be ok just to see if it makes a difference.
Despite those of you who are telling me that you are on Imuran and having no issues I just can't seem to get past the possibility of hepatosplenic T-cell lymphoma (HSTCL) which is quickly fatal. It just petrifies me that I could be the one. I know that isn't maybe rational but honestly it is a crap shoot (no pun intended), we don't know who that one will be.
I am, since tapering off the prednisone, having more frequent diarrhea, now about 6-8 times a day but that is better than 15. The Imodium and Metamucil help a little but I still have to go right after I eat ANYTHING no matter how small so yeah being out and about is not really something I look forward to. If I have to be out I just don't eat for many hours before and take a bunch of both the fiber and the Imodium. It may or may not work and I am becoming quite familiar with bathrooms all over the area I live. I have my little emergency kit I carry with me all time time now with "Poopourri" :) extra underwear, baby wipes and feminine hygiene products in case I have an accident. (Sorry if that is too much information) but I wish I didn't have to worry about it.
Sigh, well I will update you all when I figure out what I am going to do. Thanks for all the understanding and support !!
"Don't believe everything you think!"