I guess it depends how much these issues are bothering you. I think a big part of my problem was anxiety. Even when I was in remission, I was worried about a flare up. The difference between me and you, is that none of the diets or alt meds worked for me. I was seeing long-term pred change in my body regardless of being on it, I just could not get rid of the weight I had gained... When 6mp failed for me, it was all downhill. I would take pred, feel okay, but hate the way I looked. Once I tapered off, I was back to square one. Even with biologics, no luck taming the beast. I think if I were in your shoes, I would try to stick it out - so long as your scopes show that you're not dealing with severe inflammation. Untreated long-term inflammation is going to take a toll and increase cancer risk so you would need frequent monitoring. Can you try drops for the eyes? How about uceris for flare ups and enemas for maintenance? Perhaps you could keep going like you are for a very long time. Entyvio is an option and I think a few new biologics will get approved soon. unfortunately, many of them are more of the same, none of which worked for me, so I knew surgery was for me. With my anxiety, I just couldn't feel comfortable doing anything with the unpredictability of UC. It wasn't just immediate either, I couldn't make plans for next year or for 5 years. I felt very limited.
I'm not too far off from you in that none of the meds worked for me except prednisone. And we agree about
how evil that can be. The diets didn't work for me either so this smoothie thing has been a godsend but I'm always waiting for the other shoe to drop. I'm probably 80% of my former self on most days but when a flare is coming, I hurt all over and my vision gets blurry. I'm really not interested in getting back on any hardcore meds but have considered a trial they are doing here in town as there has been some success with crohns.