I just went to the er in begining of September because hadn't been to a dr for uc in about
5 years and couldn't get an appointment until the end of September. I was about
30 bms a day, urgency, accidents, dehydrated, anemic, down to 92 lbs and I knew I couldn't wait any longer, I begged the Dr office for an appointment and they just said the end of September or go to the er. Well my CT scan showed pancolitis and when the Dr saw my stool sample he asked what it was it was all liquid but dark black. I ended up being admitted and not have a dr that knew much pumped me so full of fluids that I weighed 112 in 3 days from the 92 I was admitted all fluid because I still could not eat anything but stil having about
15 bms a day. My potassium which is usually low that I have to take 3 potassium pills a day every day to being to high. The Dr told me infant of my daughter that I now have a 100% chance of colon cancer. He was going to keep me another day but when I asked about
fluid intake I had no ankles or wrist I was so bloated and about
my potassium being so high he came into my room after lunch was delivered but I still couldn't eat but I was drinking some ginger ale hoping I could hold that in he just said oh good you're eating you can go home today even though I was borderline transfusion for amenia, but I had the meds I needed prescribed so I left knowing I can take care of myself. 3 days later I was at 102 but able to walk because with all the fluid I could barely walk. The gi dr I went to isn't much better he put down mild ulcerative procolitis even though the colonoscopy he did he put
MILD ULCERATIVE COLITIS LEFT INVOLVED MORE THAN RIGHT COLON.
The perianal and digital rectal examinations were normal.
Inflammation characterized by erythema, friability, granularity,
scarring, aphthous ulcerations, serpentine ulcerations and shallow
ulcerations was found as medium-sized patches surrounded by normal
mucosa in the rectum, as medium-sized patches surrounded by normal
mucosa in the recto-sigmoid colon, as medium-sized patches surrounded by
normal mucosa in the sigmoid colon and as medium-sized patches
surrounded by normal mucosa in the descending colon. This was mild in
severity. Biopsies were taken with a cold forceps for histology. FROM RT
COLON AND LT COLON.,
Impression: - Inflammation was found in the rectum, in the
recto-sigmoid colon, in the sigmoid colon and in the
descending colon secondary to ulcerative colitis.
Recommendation: - Use Asacol 800 mg PO TID.
- Use budesonide 9 mg PO one time per day.
- Follow up with me in 2 months.
So I really don't know another dr looked at the report and couldn't believe he put mild, and does that sound like ulcerative procolitis to you?
the ramble I guess I'm upset that flare was my worst and I had been told I needed to be be hospitalized before but if I followed his orders exactly he would let me stay home. I used to just show up at his office and he would get me right in because he knew I didn't go unless I was bad I was able to handle it on my own for the most part but now with the urgency so bad I know I can't but I don't have a good dr anymore the other one moved away hence my 5 year stay away.
Asacol HD 800 mg 3x day
Previous Budesonide 3 mg total 9 mg in am
Allergic to Wheat, Dairy, Tree fruits, Tree nuts, Honey, Onions
Potassium 20 meq 3x a day
Vitamin D 50,000 twice a week
Zyrtec, Singular daily
Azelastine nose spray 2x a day
Multi vitamin daily
Post Edited (Coral) : 1/28/2016 10:15:31 PM (GMT-7)